The clinical impact of the Covid-19 pandemic first wave on patients with cystic fibrosis in New York

Predictors of Transition Outcomes in Cystic Fibrosis: Analysis of National Patient Registry and CF RISE (Responsibility. Independence. Self-care. Education) Data

Parent and adolescent perceptions of cystic fibrosis management responsibility: A mixed‐methods study

Genetic counseling access and service delivery in New York State is variable for parents of infants with complex CFTR genotypes conferring uncertain phenotypes

Characterization of 223 infants with CFTR-related metabolic syndrome/Cystic fibrosis screen positive, inconclusive diagnosis (CRMS/CFSPID) identified during the first three years of newborn screening via IRT-DNA-SEQ in New York State

Variability in evaluation and follow‐up of newborns with CRMS/CFSPID in New York State