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The aims of this study were (1) to design a user-friendly instrument to assess and optimize patient information material (PIM), (2) to develop an English version, and (3) to test its psychometric properties. The instrument was needed to optimize the top-down developed PIM of the psycho-oncological care programme isPO. First, a literature-based PIM checklist was developed by a team of patient representatives, cancer care experts and professional researchers. Next, the checklist’s reliability and validity were analysed by having cancer survivors assess the initial and optimized version of the isPO-leaflet. The User-friendly Patient Information Material Checklist (UPIM-Check), developed participatorily, was found to be effective for evaluating PIM. It uses a traffic light scale, and suggestions for improvement can be given for each criterion. Its reliability appeared to be excellent (α = 0.927). The optimized leaflet was rated significantly better than the initial one. The UPIM-Check is a reliable and valid instrument, which enables end-users (e.g., patients) to assess and optimize the quality of PIM according to scientific criteria and the needs of end-users. A bottom-up approach was essential for developing and validating the UPIM-Check. End-users constantly contributed with their specific knowledge. Thus, their position as co-researchers was significantly strengthened.
Sandra Salm; Judith Mollenhauer; Carolin Hornbach; Natalia Cecon; Antje Dresen; Stefanie Houwaart; Anna Arning; Andrea Göttel; Kathrin Schwickerath; Holger Pfaff; Nadine Scholten; Theresia Krieger. Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check). International Journal of Environmental Research and Public Health 2021, 18, 8773 .
AMA StyleSandra Salm, Judith Mollenhauer, Carolin Hornbach, Natalia Cecon, Antje Dresen, Stefanie Houwaart, Anna Arning, Andrea Göttel, Kathrin Schwickerath, Holger Pfaff, Nadine Scholten, Theresia Krieger. Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check). International Journal of Environmental Research and Public Health. 2021; 18 (16):8773.
Chicago/Turabian StyleSandra Salm; Judith Mollenhauer; Carolin Hornbach; Natalia Cecon; Antje Dresen; Stefanie Houwaart; Anna Arning; Andrea Göttel; Kathrin Schwickerath; Holger Pfaff; Nadine Scholten; Theresia Krieger. 2021. "Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check)." International Journal of Environmental Research and Public Health 18, no. 16: 8773.
Objective People with cancer are often confronted not only with the burdens of medical treatment but also with psychological strain, which can lead to mental disorders (MD). To date, the prevalence of MD in newly diagnosed cancer patients and their utilization of mental health services (MHS) are mainly estimated through data of primary studies than considering healthcare‐related claims data. Methods Statutory health insurance claims data of the AOK/KV Hesse from 2011 to 2014 was analyzed. The number of incident cancer patients with MD and the utilization of MHS within the period of the quarter of incident cancer diagnosis and three subsequent quarters were determined. For incident cancer patients with an incident MD, the predictive values of sex, age group, and tumor entity on the documentation of MD diagnosis and utilization were investigated. Results The 12‐month prevalence of MD in incident cancer patients was 31.1% for depression, 11.2% for anxiety disorders, and 9.2% for post‐traumatic stress/adjustment disorder (PTSD/AD). Of these, 65.9% received outpatient psychotherapy and 43.0% at least one psychopharmacological drug prescription. Men had a significantly lower chance of receiving an MD diagnosis following cancer. Conclusions The prevalence of MD observed was higher for depression and lower for PTSD/AD compared to meta‐analyses of clinical trials. Male cancer patients had a lower chance of receiving an MD diagnosis than females, which coincides with existing results.
Sandra Salm; Katja Blaschke; Peter Ihle; Ingrid Schubert; Antje Dresen; Holger Pfaff; Nadine Scholten. Mental disorders and utilization of mental health services in newly diagnosed cancer patients: An analysis of German health insurance claims data. Psycho-Oncology 2020, 30, 312 -320.
AMA StyleSandra Salm, Katja Blaschke, Peter Ihle, Ingrid Schubert, Antje Dresen, Holger Pfaff, Nadine Scholten. Mental disorders and utilization of mental health services in newly diagnosed cancer patients: An analysis of German health insurance claims data. Psycho-Oncology. 2020; 30 (3):312-320.
Chicago/Turabian StyleSandra Salm; Katja Blaschke; Peter Ihle; Ingrid Schubert; Antje Dresen; Holger Pfaff; Nadine Scholten. 2020. "Mental disorders and utilization of mental health services in newly diagnosed cancer patients: An analysis of German health insurance claims data." Psycho-Oncology 30, no. 3: 312-320.
Zusammenfassung Die Zusammenhänge von stimmbezogener Lebensqualität (VQOL) mit Soziodemografie und Transition bei trans* Frauen sind international wenig und im deutschsprachigen Raum noch nicht untersucht. Mittels eines Online-Surveys wurden die VQOL und wahrgenommene Weiblichkeit des eigenen Stimmklangs anhand des TVQMtF erhoben. Es wurden außerdem Daten zur Soziodemografie und Transition erfasst. Zur Bestimmung der Zusammenhänge erfolgten Korrelations- und Regressionsanalysen. Hierfür lagen auswertbare Datensätze von 127 trans* Frauen vor. Signifikanter Prädiktor für die VQOL ist die Inanspruchnahme einer geschlechtsangleichenden Operation. Für die stimmliche Selbstwahrnehmung war dies darüber hinaus die Inanspruchnahme einer Stimmoperation. Insgesamt weisen die berechneten Zusammenhänge auf eine höhere VQOL bei fortgeschrittener Transition hin, sodass im Rahmen des Stimmtrainings bei trans* Frauen der Einfluss der gesamten Transition auf den Outcome berücksichtigt werden sollte.
Sandra Salm; Sandra Neumann. Prädiktoren stimmbezogener Lebensqualität und stimmlicher Selbstwahrnehmung von trans* Frauen. Sprache · Stimme · Gehör 2019, 44, 209 -215.
AMA StyleSandra Salm, Sandra Neumann. Prädiktoren stimmbezogener Lebensqualität und stimmlicher Selbstwahrnehmung von trans* Frauen. Sprache · Stimme · Gehör. 2019; 44 (04):209-215.
Chicago/Turabian StyleSandra Salm; Sandra Neumann. 2019. "Prädiktoren stimmbezogener Lebensqualität und stimmlicher Selbstwahrnehmung von trans* Frauen." Sprache · Stimme · Gehör 44, no. 04: 209-215.
The purpose of this study was to examine the psychometric properties of the German translation of the Transsexual Voice Questionnaire for Male-to-Female Transsexuals (TVQMtF), an instrument assessing the voice-related quality of life (VrQoL) in trans women. This is a cross-sectional study. The conducted online survey contained the TVQMtF as well as a generic measurement of VrQoL (Voice Handicap Index) and items on transition. Data of 127 trans women were analyzed computing coefficients of reliability and convergent validity. Additionally, confirmatory factor analysis and model modification were performed. Analyses revealed excellent internal consistency (α = 0.97), split-half reliability (rSB = 0.95) and good convergent validity. Significant associations were found between the total scores of the German TVQMtF and the Voice Handicap Index (r = 0.88; P < 0.001) as well as the vocal self-perception (r = −0.57; P < 0.001). An acceptable model with a two-factor structure including 22 of the 30 items was found. The TVQMtF is the first German reliable and valid measurement of VrQoL for trans women. Therefore, its utilization can be recommended for clinical and research purposes in the fields of voice therapy and surgery.
Sandra Salm; Kira Isabel Hower; Sandra Neumann; Lena Ansmann. Validation of the German Version of the Transsexual Voice Questionnaire for Male-to-Female Transsexuals. Journal of Voice 2018, 34, 68 -77.
AMA StyleSandra Salm, Kira Isabel Hower, Sandra Neumann, Lena Ansmann. Validation of the German Version of the Transsexual Voice Questionnaire for Male-to-Female Transsexuals. Journal of Voice. 2018; 34 (1):68-77.
Chicago/Turabian StyleSandra Salm; Kira Isabel Hower; Sandra Neumann; Lena Ansmann. 2018. "Validation of the German Version of the Transsexual Voice Questionnaire for Male-to-Female Transsexuals." Journal of Voice 34, no. 1: 68-77.
Purpose Our purpose was to explore the validity and reliability of the German Focus on the Outcomes of Communication Under Six (FOCUS-G; Thomas-Stonell, Oddson, Robertson, & Rosenbaum, 2010, 2012), which is an authorized adaptation of the Focus on the Outcomes of Communication Under Six (Thomas-Stonell et al., 2010) tool, which measures communicative participation in preschool children. Method Parents of typically developing children (TDC) and of children with speech impairment (CSI) completed the FOCUS-G and the Questionnaire for Measuring Health-Related Quality of Life in Children (KiddyKINDL; Ravens-Sieberer & Bullinger, 2000). To determine test–retest reliability, the FOCUS-G was readministered to a subsample of parents 1 week later. Results The FOCUS-G had high values for internal consistency (α = .959, Ω = .941), test–retest reliability (intraclass correlation coefficient = .974), and split–half reliability ( r = .832). Total scores on the FOCUS-G and KiddyKINDL demonstrated significant associations. FOCUS-G total scores and subdomain scores for both samples showed significant correlations, indicating good construct validity. The discriminatory ability of the FOCUS-G was indicated by significantly higher mean scores for TDC ( M = 6.03, SD = 0.65) than CSI ( M = 5.47, SD = 1.02). Conclusion The overall good psychometric properties of this novel assessment of communicative participation support its use by speech-language pathologists for clinical and research purposes with German-speaking children.
Sandra Neumann; Sandra Salm; Christian Rietz; Prisca Stenneken. The German Focus on the Outcomes of Communication Under Six (FOCUS-G): Reliability and Validity of a Novel Assessment of Communicative Participation. Journal of Speech, Language, and Hearing Research 2017, 60, 675 -681.
AMA StyleSandra Neumann, Sandra Salm, Christian Rietz, Prisca Stenneken. The German Focus on the Outcomes of Communication Under Six (FOCUS-G): Reliability and Validity of a Novel Assessment of Communicative Participation. Journal of Speech, Language, and Hearing Research. 2017; 60 (3):675-681.
Chicago/Turabian StyleSandra Neumann; Sandra Salm; Christian Rietz; Prisca Stenneken. 2017. "The German Focus on the Outcomes of Communication Under Six (FOCUS-G): Reliability and Validity of a Novel Assessment of Communicative Participation." Journal of Speech, Language, and Hearing Research 60, no. 3: 675-681.