There has been increasing attention to quality of life for families supporting children with disabilities internationally; however, there is minimal research on family quality of life (FQOL) in low-income countries, and specifically in African contexts. This study explored how Ethiopian families of children with disabilities conceptualised FQOL and what they perceived their support needs related to FQOL were. Using a qualitative exploratory descriptive design, we interviewed Ethiopian family members of children with various disabilities. Audio-recorded interviews were transcribed verbatim and translated into English with professional translation assistance. We analysed translated transcripts inductively based on Braun and Clarke’s approach to thematic analysis. We found that spirituality was core to families and that they described FQOL in terms of their relationships within the immediate family and with the community. Additionally, families wanted to be self-sufficient and provide for themselves, but with the additional challenges of raising a child with a disability and pervasive poverty, they recognised their need for more support. Therefore, providing holistic, family-centred services to Ethiopian families of children with disabilities can contribute to enhancing FQOL.
20 December 2020 in South African Journal of Occupational Therapy
Objective: This scoping review explores the role of occupational therapy in African countries including major practice areas, specific activities within practice areas, and potential considerations unique to the African context.Method: Two authors independently reviewed articles from online database searches and manual searches of reference lists and specific Occupational therapy journals using a combination of keywords related to 'Occupational Therapy', 'Africa' and 'role'. Articles were included based on pre-determined eligibility criteria (i.e. peer-reviewed, English articles andf descripte the occupational therapists' tasks/activities and discussion to reach consensus. The authors charted data through content analysis of the articles based on the review's objectives prior to drawing out common themes relevant to the African continent.Results: Thirty-two articles were included covering twelve African countries, though predominantly focused on South Africa. Findings demonstrated that, despite having tasks specific to practice areas, the overarching role of occupational therapy is facilitating engagement in meaningful occupation. Additionally, the findings highlight a vital role for African therapists in community-based services and the need to consider the unique cultural context in practice.Conclusion: Congruent with universal occupational therapy principles, Occupational Therapy in Africa aims to facilitate engagement in meaningful occupation, but therapists should consider their unique cultural context to ensure meaningful and sustainable outcomes whilst maintaining a valuable universal identityObjective: This scoping review explores the role of occupational therapy in African countries including major practice areas, specific activities within practice areas, and potential considerations unique to the African context. Key words: Occupational Therapy, Occupational Therapists, Africa, role, culture, community-based
Background: Family quality of life (FQOL) is an important outcome for families of children with disabilities globally and provision of support is associated with enhanced FQOL. However, FQOL research primarily focuses on conceptualisation and measurement, and originates from high-income contexts despite the fact that most children with disabilities live in low-income countries.Objectives: The authors examined how Ethiopian disability support providers practically contribute to meeting the needs of families of children with disabilities to enhance FQOL.Method: Building on a previous study exploring Ethiopian families’ perspectives on FQOL, the authors used an exploratory descriptive qualitative approach to interview various support providers. Interviews were conducted virtually (because of the coronavirus disease 2019 [COVID-19] pandemic) in English or with interpreting assistance. Audio-recorded interviews were transcribed verbatim and analysed thematically.Results: Support providers affirmed what families had described as important for FQOL – spirituality, relationships, self-sufficiency – and recognised their enormous support needs. They described various ways to support families – emotionally, physically, materially and informationally. They also expressed challenges and their need for support to meet families’ needs.Conclusion: Ethiopian families of children with disabilities need holistic support that incorporates spirituality, the whole family’s needs and disability awareness-raising. Collaborative and committed engagement from all stakeholders is necessary to support Ethiopian families to flourish.Contribution: This study contributes to global understandings of FQOL and describes practical approaches to support families of children with disabilities in an African context. The findings of this study highlight the influence of spirituality, relationships, self-sufficiency, poverty and stigma and the need for holistic support and disability awareness-raising to enhance FQOL.
Adequate housing is a social determinant of health and well-being, providing stability from which people can engage in important life activities, including self-care and productivity. Social housing is a system-level intervention that aims to provide affordable housing to people vulnerable to experiencing social and economic marginalisation. Given the importance of employment to social-economic status and overall health and well-being, we sought to better understand the available knowledge and research related to employment and living in a social housing environment. We used scoping review methodology to explore peer-reviewed research published between 2012–2022 regarding social housing and employment, identifying 29 relevant articles. Using the Psychology of Working Theory and neighbourhood effects as interpretive theoretical frameworks, we analysed the extracted data. Overall, the results affirmed that social housing residents have low employment rates conceptualised as related to the complex interplay of a range of personal and environmental factors. Most published literature was quantitative and originated from the United States. Policy and research implications are discussed, including the need for more multifaceted, person-centred interventions that support employment and ultimately promote health and quality of life for social housing residents.
22 April 2024 in Canadian Journal of Disability Studies
Background: Natural supports provide crucial emotional, informational, and instrumental support for people with disabilities and can facilitate social inclusion and belonging. Minimal research explores natural support in Canadian contexts for people with disabilities. Purpose: This scoping review identifies how natural supports for adults with disabilities in Canada are described in published research literature. Method: Using Arksey and O’Malley’s scoping review framework, coupled with recommendations from Levac et al., and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines for scoping reviews, we searched a range of academic databases for relevant empirical studies related to the following research question: How are natural supports for adults with disabilities in Canada described in published research literature? Results: Fifteen articles met the inclusion criteria. Family and non-family support systems and other social networks provided crucial natural support to Canadians with disabilities. We organized content related to the role of natural supports into the categories of: (a) being financially secure; (b) contributing to and participating in caring and inclusive communities; (c) being respected and empowered to make decisions; (d) knowing the loving support of friends and family; and (e) choosing a place to live and call home. Caregiver burnout and stigmatization of disability were reported as barriers to natural support, and formal and natural support provision at times, overlapped. There was a notable absence of information related to having a well-planned future, and limited diverse representation in the studies. Conclusion: Support is vital to the wellbeing of individuals with disabilities in many different life domains. This scoping review reveals a dearth of research on natural supports in Canada, and calls for increased engagement with and recognition of natural supports from a diversity of perspectives.