The do-it-yourself (DIY) artificial pancreas system (APS) community is led by people with diabetes (PWD) and their families. In contrast to standard models of care, in which health care professionals are responsible for the education and training of PWD and their families, within the DIY APS, community users are reliant on their peers for education and training. The provision of this support has not previously been studied. This article focuses on the role of mentors within the DIY APS community. Semistructured interviews were conducted with mentors (n = 9) who were identified with assistance from the DIY APS community. Thematic analysis was undertaken. Results were presented to select participants who endorsed the results as an accurate description of mentoring in the DIY APS community. Mentors’ primary motivation was altruism. An empathetic, process-focused approach was modeled by prominent mentors. The use of online forums as the primary source of user support was perceived to be an effective method for sharing the workload. Key challenges for mentors included the frequency with which users asked questions that were answered in the existing documentation, dealing with conflict and managing workload. Most participants did not perceive mentoring to be risky, but did take steps to ensure that users were taking responsibility for their own systems. This study is the first to examine the role of mentors within the DIY APS community and also within the broader diabetes online community. Future research might seek to quantify the empathetic, process-focused approach to mentoring.
13 July 2012 in International Review for the Sociology of Sport
Over the past 10 years, there has been an increasing focus on the complexity and diversity of masculinities produced in sporting contexts. In this article, I draw on Foucauldian notions of power and discourse to examine the performances of elite male Ultimate players. Based on a year-long ethnographic study with an elite male Ultimate team, I contribute to this growing body of literature by analyzing the performance of multiple masculinities by players within this team.
In this paper we draw from Foucault, particularly his writings on the technologies of self, to problematize and reimagine understandings of what it means to coach effectively and ethically. In recognising the difficulty of operationalising Foucauldian ideas, we provide a narrative-of-self to reveal how an elite tennis coach, Göran Gerdin, adopted Foucauldian ideas in a process of ethical self-creation. The narrative reveals how Göran experienced the tragedy of youth player suicide and how he critically reflected on his coaching role in relation to this tragedy. Through specifically problematizing the insidious influence of technologies of dominance on athletic subjectivity, Göran reveals how he drew from Foucault to develop alternative coach practices and a related telos. We conclude by reflecting on pragmatic issues associated with coaching with Foucault.
27 December 2016 in Journal of Sport and Social Issues
Foucault’s technologies of the self have been used by sociological scholars of sport for nearly two decades. Yet Markula’s seminal articulation of a feminist Foucauldian ethics in 2003 stands as a watershed publication, insofar as the majority of publications following this article have framed much of their analyses in relation to this work. In this article, then, I review sociological studies of sport and exercise that draw on Foucauldian ethics from Markula’s article onward, paying careful attention to how Foucault’s ethics and Markula’s Foucauldian feminism have been deployed. Although I interpret this body of work as productive and insightful, I offer a critical reading of the emphasis on explicit problematizations and, relatedly, develop a methodological critique of researchers’ reliance on interviews as a prime form of research method.
Continuous glucose monitoring (CGM) decreases fear of hypoglycemia (FOH) and improves glycemic control among those affected by type 1 diabetes (T1D). No studies to date have examined the impact of using do‐it‐yourself real‐time continuous glucose monitoring (DIY RT‐CGM) on psychological and glycemic outcomes. Child–parent dyads were recruited for a multicentre randomized crossover trial. Children with T1D were current intermittently scanned CGM (isCGM) users and aged 2–13 years. Families received either 6 weeks of DIY RT‐CGM with parental remote monitoring (intervention) or 6 weeks of isCGM plus usual diabetes care (control), followed by a 4‐week washout period, then crossed over. The primary outcome was parental FOH. Secondary outcomes were glycemic control using traditional CGM metrics, as well as a range of other psychosocial measures. Fifty five child–parent dyads were recruited. The child mean age was 9.1 ± 2.8 years. Although, there was no effect on parental FOH, −0.1 (95%CI: −0.3, 0.1, p = 0.4), time‐in‐range (TIR) (%3.9‐10 mmol/L) was significantly higher with DIY RT‐CGM over isCGM (54.3% ± 13.7 vs. 48.1% ± 13.6), mean difference, 5.7% (95%CI 1.8, 9.6, p <0.004). There was no difference for time spent in hypoglycemia. Parent diabetes treatment satisfaction was significantly higher following DIY RT‐CGM compared to isCGM, mean difference 5.3 (95%CI: 2.3, 8.2, p <0.001). The use of DIY RT‐CGM versus isCGM did not improve parental FOH; however, TIR and parental satisfaction with diabetes treatment were significantly improved. This suggests in the short term, DIY RT‐CGM appears safe and may offer families some clinically important advantages over isCGM.