I raise awareness and advocate for people living with rare and invisible illness, living with a few rare diseases myself. I mostly do this as a patient expert, public speaker and through my blog turned website: Ma vie de zèbre (My Zebra Life). I launched Ma vie de zèbre in 2013 because I had difficulty finding information on hypermobile Ehlers-Danlos syndrome, my only rare diagnosis at the time, and what little I could find wasn't relatable to Québec. I wanted to changed that. I'm very active as a patient partner, being involved in many projects and doing things like helping policy changes, co-creating surveys, educating future healthcare professionals, and much more. I was a translator and editor (in French and in English) and before that worked many years in show business (on stage but also behind the scenes). I have a bachelor's degree in psychology, but also studied in Arts and literature and in event production. My atypical life experiences give me a different view on things that I love to share with people and, I hope, can inspire. My motto is that life's obstacles are not obstacles to happiness!