Background: Factors related to the desire of receiving psychological help in cancer patients are not well known. The aim of this study is to assess the prevalence of patients who would ask for psychological assistance in the first weeks following diagnosis, and to identify their psychosocial and disease-related profile. Method: This cross-sectional study assessed 229 consecutive cancer outpatients at a visit with their oncologist to be informed about the treatment they will receive. Disease-related and medical characteristics were assessed, and patients were asked about their mood states, levels of self-efficacy, and difficulties coping with the disease. Finally, patients were asked about their desire to receive psychological assistance. Results: Only 20% of patients expressed a desire for psychological help. These patients were lower in age and had previous history of mood disorders and reported higher discouragement and coping difficulties. These variables explained 30.6% of variance. Conclusions: Although psycho-oncologists can provide helpful interventions, the percentage of patients interested in receiving psychological assistance in this study is low. Although further studies are needed, results from this study suggest methods that could easily be used by oncologists and nurses to identify patients who would like to receive psychological support.
1 February 1994 in British Journal of Clinical Psychology
Introduction: Central Nervous System Tumor (CNST) survivors tend to show worse HRQoLthan survivors of other types of cancer and general population. There are still many doubts about whatvariables and to what extend these are related to their HRQoL. Type and severity of late effects havenot a clear impact on HRQoL. However, Intelligence Quotient (IQ) changes as a specific late effectof this sample population, could modulate their HRQL. Furthermore, coping from both patients andparents, as well as parental distress could play a significant role modulating HRQoL in these survivors.Aim: To study whether survivors’ coping strategies and IQ, as well as coping, general stress and cancerrelateddistress of parents could modulate some psychosocial dimensions of their children HRQoL.Methodology: Correlational descriptive cross-sectional study. Thirty-seven teenagers (12-19 years old,both included) ≥1 year free of disease and 44 parents were recruited for the study. Results: When HRQoLis assessed by adolescents, the dimensions Parent Relations and Home Life, Social Support and Peer,and School Environment are related with the use of coping with problem style by adolescents. SocialAcceptance/Bullying dimension is related with nonproductive coping by the adolescent and helpseekingcoping style by parents. HRQoL assessed by parents is related with late effects, adolescents’ IQ, andtype of oncological treatment received. Discussion/Conclusion: Coping strategies, and specificallyproblem-solving strategies must be taken into account to assess and to intervene in the improvement ofHRQoL of this sample population.
Introduction: Long-term effects of childhood tumors can alter the trajectory of adjustment and psychosocial adjustment of survivors later in life. Purpose: This systematic review focuses on analyzing the experiences of posttraumatic growth, posttraumatic stress, emotional distress, and psychosocial difficulties experienced by young adult survivors of pediatric cancer. Results: The results suggest a more prevalent trajectory that could be conceptualize as adaptive, in which both post-traumatic growth (prevalence greater than 50%) and post-traumatic stress symptoms (prevalence less than 30%) are observed. However, compared to the non-oncology control population, these survivors are at higher risk for anxiety and depressive symptoms, lower educational and occupational attainment, and remaining single or living alone, which is hypothesized to be related to the sequelae of each tumor type and treatment, and not just the disease experience. Conclusions: Care for young adult survivors of pediatric cancer should focus on providing enhanced long-term medical and psychosocial support through an interdisciplinary approach and person-centered care as an approach that supports a trajectory of adaptive adjustment. Introducción: Los efectos a largo plazo de tumores en la infancia pueden alterar la trayectoria de adaptación y ajuste psicosocial de los supervivientes en etapas de vida posteriores. Objetivo: Esta revisión sistemática se centra en analizar las experiencias de crecimiento postraumático, estrés postraumático, malestar emocional y dificultades psicosociales sufridas por jóvenes adultos supervivientes a un cáncer en etapa pediátrica. Resultados: Los resultados sugieren una trayectoria mayoritaria que podría definirse como adaptativa, en la que se observa tanto crecimiento postraumático (prevalencia superior al 60%), como síntomas de estrés postraumático (prevalencia inferior al 30%). No obstante, en comparación con población control no oncológica, estos supervivientes tienen mayor riesgo de padecer síntomas de ansiedad y depresión, de alcanzar menores logros educativos y profesionales, y de permanecer solteros o vivir solos, lo que se hipotetiza que podría estar relacionado con las secuelas de cada tipo de tumor y tratamiento, y no únicamente con la vivencia de la enfermedad. Conclusiones: La atención a jóvenes adultos supervivientes a un cáncer pediátrico debería centrarse en proporcionar mayor apoyo médico y psicosocial a largo plazo, a través del abordaje interdisciplinar y la atención centrada en la persona, como aproximación que favorezca una trayectoria de ajuste adaptativa.
Cancer survivors must adapt in many cases to sequelae and limitations that produce emotional distress and stress daily. Social support can help reduce this discomfort, but the effects of how often it is received still need to be determined or whether its absence produces adverse effects. The present study evaluated the daily discomfort of 60 cancer survivors, using daily recordings, the stress experienced, and the social support received. The results indicate that receiving social support reduces discomfort in the short term but seems less effective when the patient attributes the cause of discomfort to being a survivor. The reduction in discomfort, however, is not sustained in the long term. These results suggest that the survivor should receive help to cope with daily discomfort and their social environment to understand better its causes to provide more effective support. Los supervivientes de cáncer deben adaptarse en muchos casos a secuelas y limitaciones que producen malestar emocional y estrés de manera cotidiana. El apoyo social puede ayudar a reducir tal molestia, pero no está clara la frecuencia con que debe recibirse, y tampoco si su falta produce efectos negativos. En esta investigación sobre el malestar cotidiano de 60 supervivientes de cáncer se evaluó mediante registros diarios el estrés que habían experimentado y el grado en que habían recibido apoyo social. Los resultados indican que recibir apoyo social es eficaz para reducir el malestar, pero lo es menos cuando la causa del malestar se atribuye al hecho de ser un superviviente. Tales resultados sugieren que debe ayudarse al superviviente a afrontar el malestar cotidiano, y a su entorno social a comprender mejor las causas del mismo para poder ofrecer un apoyo más eficaz.