Anna-Karin Edberg

Prof. Dr. Anna-Karin Edberg


Research Focus & Metrics

Academic Career Length

20Years (2007-Present)

(Calculated once Scilit publication data is synced: current year − year of first publication + 1)

Representative Publications

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1 January 2018 in International Journal of Qualitative Studies on Health and Well-being
Verified
Journal Article
Open access
MSMalin Sundström
Malin Sundström
AEAnna-Karin Edberg
Anna-Karin Edberg
MRMargareta Rämgård
Margareta Rämgård
KBKerstin Blomqvist
Kerstin Blomqvist
Purpose: Existential loneliness is part of being human that is little understood in health care, but, to provide good care to their older patients, professionals need to be able to meet their existential concerns. The aim of this study was to explore health care professionals’ experiences of their encounters with older people they perceive to experience existential loneliness. Method: We conducted 11 focus groups with 61 health professionals working in home care, nursing home care, palliative care, primary care, hospital care, or pre-hospital care. Our deductive–inductive analytical approach used a theoretical framework based on the work of Emmy van Deurzen in the deductive phase and an interpretative approach in the inductive phase. Results: The results show that professionals perceived existential loneliness to appear in various forms associated with barriers in their encounters, such as the older people’s bodily limitations, demands and needs perceived as insatiable, personal shield of privacy, or fear and difficulty in encountering existential issues. Conclusion: Encountering existential loneliness affected the professionals and their feelings in various ways, but they generally found the experience both challenging and meaningful.

7 November 2018 in International Journal of Older People Nursing
Verified
Journal Article
Closed access
PDF file
MSMarina Sjöberg
Marina Sjöberg
AEAnna-Karin Edberg
Anna-Karin Edberg
BRBirgit Holritz Rasmussen
Birgit Holritz Rasmussen
IBIngela Beck
Ingela Beck

24 June 2021 in BMC Palliative Care
Verified
Journal Article
Open access
PDF file
MSM. Sjöberg
M. Sjöberg
AEAnna-Karin Edberg
Anna-Karin Edberg
BRBirgit Holritz Rasmussen
Birgit Holritz Rasmussen
IBI. Beck
I. Beck
Background: Palliative care focuses on identifying, from a holistic perspective, the needs of those experiencing problems associated with life-threatening illnesses. As older people approach the end of their lives, they can experience a complex series of problems that health-care professionals must identify and document in their patients’ records. Documentation is thus important for ensuring high-quality patient care. Previous studies of documentation in older people’s patient records performed in various care contexts have shown that such documentation almost exclusively concerns physical problems. This study explores, in the context of Swedish specialised palliative care, the content of documentation in older people’s patient records, focusing on documented problems, wishes, aspects of wellbeing, use of assessment tools, interventions, and documentation associated with the person’s death. Methods: A retrospective review based on randomly selected records (n = 92) of older people receiving specialised palliative care, at home or in a palliative in-patient ward, who died in 2017. A review template was developed based on the literature and on a review of sampled records of patients who died the preceding year. The template was checked for inter-rater agreement and used to code all clinical notes in the patients’ records. Data were processed using descriptive statistics. Results: The most common clinical notes in older people’s patient records concerned interventions (n = 16,031, 71%), mostly related to pharmacological interventions (n = 4318, 27%). The second most common clinical notes concerned problems (n = 2804, 12%), pain being the most frequent, followed by circulatory, nutrition, and anxiety problems. Clinical notes concerning people’s wishes and wellbeing-related details were documented, but not frequently. Symptom assessment tools, except for pain assessments, were rarely used. More people who received care in palliative in-patient wards died alone than did people who received care in their own homes. Conclusions: Identifying and documenting the complexity of problems in a more structured and planned way could be a method for implementing a more holistic approach to end-of-life care. Using patient-reported outcome measures capturing more than one symptom or problem, and a systematic documentation structure would help in identifying unmet needs and developing holistic documentation of end-of-life care.

26 April 2019 in International Journal of Older People Nursing
Verified
Journal Article
Closed access
PDF file
MSMalin Sundström
Malin Sundström
KBKerstin Blomqvist
Kerstin Blomqvist
AEAnna-Karin Edberg
Anna-Karin Edberg
MRMargareta Rämgård
Margareta Rämgård

12 May 2020 in Scandinavian Journal of Caring Sciences
Verified
Journal Article
Open access
PDF file
MSMalin Sundström
Malin Sundström
KBKerstin Blomqvist
Kerstin Blomqvist
AEAnna-Karin Edberg
Anna-Karin Edberg
Background: The increasing proportion of older people worldwide is challenging society and the healthcare sector to develop new solutions, such as involving volunteers, especially to combat loneliness among older people. Loneliness is a broad concept comprising, for example existential loneliness – a deep feeling of aloneness in the world. We know little about volunteers’ experience of encountering older people’s loneliness in general and existential loneliness in particular. Such knowledge is important in order to develop high‐quality volunteering.Aim: This study aimed to describe volunteers’ experience of becoming and being a volunteer, and encountering older people’s loneliness in general and existential loneliness in particular.Methods: This descriptive qualitative study is based on eight focus group interviews and twelve individual interviews with volunteers from different organisations, analysed using conventional content analysis.Findings: Being a volunteer meant being a fellow human being, alleviating loneliness for others and oneself. Becoming a volunteer was a way of finding meaning, and volunteering made the volunteers feel rewarded and simultaneously emotionally challenged. Being a volunteer also meant acting on one’s values, challenging boundaries when necessary. Encountering loneliness, including existential loneliness, required sensitivity to others’ needs for both closeness and distance.Conclusion: Being a volunteer benefitted not only the older persons the volunteers met, but also the volunteers’ own sense of meaning, by alleviating their own loneliness. Sharing existential thoughts and having meaningful conversations about life and death are challenging, but can contribute to the personal growth of the volunteers themselves. It is important to remember that not all volunteers are confident in having existential conversations, so it is important to pay attention to each volunteer’s prerequisites and needs. In addition, there is a need for support to volunteers’ engagement such as clarifying their role and clarifying the responsibility and expectations from health and social care.

5 July 2019 in International Journal of Older People Nursing
Verified
Journal Article
Closed access
PDF file
HWH. S. Maliga S. K. Wijesiri
H. S. Maliga S. K. Wijesiri
KSKerstin Samarasinghe
Kerstin Samarasinghe
AEAnna-Karin Edberg
Anna-Karin Edberg