Objective: Amyotrophic lateral sclerosis (ALS) affects the life of the family caregiver as well as the patient. This study aimed to determine the care burden and related factors among family caregivers of Turkish ALS patients. Methods: This descriptive study was conducted with 108 ALS patients and their informal caregivers through face-to-face interviews at home. The data were collected using the ALS Functional Rating Scale, Zarit Burden Interview, European Quality of Life-Five Dimensions Questionnaire, Multidimensional Scale of Perceived Social Support, and the Hospital Anxiety and Depression Scale. Results: The mean age of the caregivers was 48.1 ± 13.4 years; the vast majority were female, and they were either spouses or children of the patients. While 49.1% reported moderate or severe burden, the quality of life was moderate (mean 70.4 ± 22.8). The caregiver burden was related to sex and the functional state of the patient, as well as caregiver factors such as the relation to the patient, sex, health status, time spent for care, and living in the same house with a limited environment. Walking ability, percutaneous endoscopic gastrostomy, tracheostomy, and communication problems were not associated with the burden. Furthermore, burden was associated with the caregiver’s quality of life, social support, anxiety, and depression. Conclusions: The present study draws attention to the fact that the care burden in family caregivers of ALS patients is high and their quality of life is impaired. Our findings reveal that not only ALS patients but also caregivers need to be supported with an organized and planned system.
This study explores nurses' perceptions of how climate change may impact wound and ostomy care, focusing on their awareness, experiences, and perceived challenges in clinical practice. It also aims to contribute to the development of sustainable care strategies in nursing. A sequential mixed‐methods design was used to collect quantitative data from 95 certified wound and ostomy nurses and conduct four focus group discussions with 23 nurses. The study followed the ‘Global Model for Operationalizing Sustainability in Nursing’, and qualitative data were analysed using thematic analysis. Nurses demonstrated moderate‐to‐high awareness of climate change, with the highest score in the ‘expectations’ subdimension (76.78 ± 10.21). Most nurses (96.9%) believed that rising temperature and humidity would increase wound infections, and 93.8% anticipated adverse effects on skin integrity based on clinical experience. Regarding stoma complications, 94.8% identified fungal infections and 89.6% reported peristomal moisture‐related damage as significant concerns. Four key themes emerged: (1) Structural factors (Cultural Bridging and Resource Evaluation), (2) Process (Nurses' Actions and Educational Activities), (3) Outcome (Observed Changes and Professional Adaptation), and (4) Future perspective (Nurses' Leadership and Sustainability). This study reveals nurses' perceptions that climate change may affect wound and ostomy care. While based on subjective reports rather than empirical data, these findings reflect common clinical concerns. Highlighting the need for climate‐focused education and planning, the study calls for greater integration of environmental awareness into nursing practice to support adaptive, patient‐centred care.