Agnes van der Heide

Dr. Agnes van der Heide


Research Focus & Metrics

Academic Career Length

24Years (2003-Present)

(Calculated once Scilit publication data is synced: current year − year of first publication + 1)

Representative Publications

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1 August 2003 in The Lancet
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Journal Article
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AHAgnes van der Heide
Agnes van der Heide
LDLuc Deliens
Luc Deliens
KFKarin Faisst
Karin Faisst
TNTore Nilstun
Tore Nilstun
MNMichael Norup
Michael Norup
PMPaul J van der Maas
Paul J van der Maas

10 May 2007 in New England Journal of Medicine
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Journal Article
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AHAgnes van der Heide
Agnes van der Heide
BOBregje D. Onwuteaka-Philipsen
Bregje D. Onwuteaka-Philipsen
MRMette L. Rurup
Mette L. Rurup
HBHilde M. Buiting
Hilde M. Buiting
JDJohannes J.M. van Delden
Johannes J.M. van Delden
GWGerrit van der Wal
Gerrit van der Wal
In 2002, an act regulating the ending of life by a physician at the request of a patient with unbearable suffering came into effect in the Netherlands. In 2005, we performed a follow-up study of euthanasia, physician-assisted suicide, and other end-of-life practices.

22 October 2010 in BMC Public Health
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Journal Article
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MHMarieke Ten Have
Marieke Ten Have
IBInez D de Beaufort
Inez D de Beaufort
JMJohan P Mackenbach
Johan P Mackenbach
AHAgnes van der Heide
Agnes van der Heide
The prevention of overweight sometimes raises complex ethical questions. Ethical public health frameworks may be helpful in evaluating programs or policy for overweight prevention. We give an overview of the purpose, form and contents of such public health frameworks and investigate to which extent they are useful for evaluating programs to prevent overweight and/or obesity. Our search for frameworks consisted of three steps. Firstly, we asked experts in the field of ethics and public health for the frameworks they were aware of. Secondly, we performed a search in Pubmed. Thirdly, we checked literature references in the articles on frameworks we found. In total, we thus found six ethical frameworks. We assessed the area on which the available ethical frameworks focus, the users they target at, the type of policy or intervention they propose to address, and their aim. Further, we looked at their structure and content, that is, tools for guiding the analytic process, the main ethical principles or values, possible criteria for dealing with ethical conflicts, and the concrete policy issues they are applied to. All frameworks aim to support public health professionals or policymakers. Most of them provide a set of values or principles that serve as a standard for evaluating policy. Most frameworks articulate both the positive ethical foundations for public health and ethical constraints or concerns. Some frameworks offer analytic tools for guiding the evaluative process. Procedural guidelines and concrete criteria for solving important ethical conflicts in the particular area of the prevention of overweight or obesity are mostly lacking. Public health ethical frameworks may be supportive in the evaluation of overweight prevention programs or policy, but seem to lack practical guidance to address ethical conflicts in this particular area.

18 October 2021 in BMC Palliative Care
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Journal Article
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YBYvonne N. Becqué
Yvonne N. Becqué
JRJudith A. C. Rietjens
Judith A. C. Rietjens
AHAgnes van der Heide
Agnes van der Heide
EWErica Witkamp
Erica Witkamp
Background: Family caregivers are crucial in providing end-of-life care at home. Without their care, it would be difficult for many patients to die at home. In addition to providing care, family caregivers also need support for themselves. Nurses could play an important role in supporting family caregivers, but little is known about if and how they do so. The aim of this study is to explore how nurses currently approach and support family caregivers in end-of-life home care and which factors influence their support of family caregivers.Methods: Data were collected using semi-structured interviews with 14 nurses from nine home care organisations in the Netherlands, in 2018. Interviews were audio-taped, transcribed verbatim and analysed using a thematic analysis approach.Results: We identified two underlying nursing perspectives on supporting family caregivers: an instrumental perspective (seeing family caregivers mostly as collaborative partners in care) and a relational perspective (seeing family caregivers as both providing and needing support). All the interviewed nurses stated that they pay attention to family caregivers’ needs. The activities mentioned most often were: identification of support needs, practical education, support in decision-making about the patient’s treatment, emotional support, and organising respite care, such as night care, to relieve the family caregiver. The provision of support is usually based on intuition and experience, rather than on a systematic approach. Besides, nurses reported different factors at the individual, organisational and societal levels that influenced their support of family caregivers, such as their knowledge and experience, the way in which care is organised, and laws and regulations.Conclusions: Nurses tend to address family caregivers’ needs, but such care was affected by various factors at different levels. There is a risk that nursing support does not meet family caregivers’ needs. A more reflective approach is needed and evidence-based needs assessment tools may help nurses to systematically assess family caregivers’ needs and to provide appropriate support.

3 August 2017 in New England Journal of Medicine
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Journal Article
Closed access
PDF file
AHAgnes van der Heide
Agnes van der Heide
JDJohannes J.M. van Delden
Johannes J.M. van Delden
BOBregje D. Onwuteaka-Philipsen
Bregje D. Onwuteaka-Philipsen
In the Netherlands, the much debated practice of physician assistance in dying has been legally regulated since 2002.1,2 Such assistance may include physician-assisted suicide or euthanasia, in which a physician administers lethal medication at the explicit request of a patient. Both types of assistance are allowed only for patients who are “suffering unbearably” without any prospect of relief.

1 October 2020 in Supportive Care in Cancer
Verified
Journal Article
Open access
PDF file
MZM. Zwakman
M. Zwakman
MMM. M. Milota
M. M. Milota
AHAgnes van der Heide
Agnes van der Heide
LJL. J. Jabbarian
L. J. Jabbarian
IKI. J. Korfage
I. J. Korfage
MKM. C. Kars
M. C. Kars
Purpose: Patients’ readiness for advance care planning (ACP) is often considered a prerequisite for starting ACP conversations. Healthcare professionals’ uncertainty about patients’ readiness hampers the uptake of ACP in clinical practice. This study aims To determine how patients’ readiness is expressed and develops throughout an ACP conversation. Methods: A qualitative sub-study into the ACTION ACP conversations collected as part of the international Phase III multicenter cluster-randomized clinical trial. A purposeful sample was taken of ACP conversations of patients with advanced lung or colorectal cancer who participated in the ACTION study between May 2015 and December 2018 (n = 15). A content analysis of the ACP conversations was conducted. Results: All patients (n = 15) expressed both signs of not being ready and of being ready. Signs of being ready included anticipating possible future scenarios or demonstrating an understanding of one’s disease. Signs of not being ready included limiting one’s perspective to the here and now or indicating a preference not to talk about an ACP topic. Signs of not being ready occurred more often when future-oriented topics were discussed. Despite showing signs of not being ready, patients were able to continue the conversation when a new topic was introduced. Conclusion: Healthcare professionals should be aware that patients do not have to be ready for all ACP topics to be able to participate in an ACP conversation. They should be sensitive to signs of not being ready and develop the ability to adapt the conversation accordingly.