William C Kjeldsen

Mr. William C Kjeldsen

orcid

Research Focus & Metrics

Academic Career Length

3Years (2024-Present)

(Calculated once Scilit publication data is synced: current year − year of first publication + 1)

Representative Publications

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24 October 2024 in Children
Verified
Journal Article
Open access
PDF file
KBKanishka Baduni
Kanishka Baduni
AMAllison McIntyre
Allison McIntyre
CKCaitlin P. Kjeldsen
Caitlin P. Kjeldsen
LMLarken R. Marra
Larken R. Marra
WKWilliam C Kjeldsen
William C Kjeldsen
NMNathalie L Maitre
Nathalie L Maitre
Background: Early motor development is fundamental in driving cognitive skill acquisition. Motor delays in children with cerebral palsy (CP) often limit exploratory behaviors, decreasing opportunities or the quality of cognitive development, emphasizing the importance of early intervention. This study aimed to assess immediate and 5-month motor and cognitive changes in infants and toddlers at risk of or with CP after participation in a community-based program. Methods: Twenty-two children (mean age: 22 ± 7 months) classified using the Gross Motor Function Classification System (GMFCS) and mini-Manual Ability Classification System (mini-MACS) participated in a 6-day community-based activity program, with outcomes assessed using the Developmental Assessment of Young Children (DAYC-2). Results: Participants who met their motor goals post-participation had significantly higher cognitive scores (p = 0.006) 5 months after the program. Participants with higher functional motor abilities (GMFCS levels I–II, p = 0.052; mini-MACS levels I–II, p = 0.004) demonstrated better cognitive scores at 5 months, adjusted for baseline scores, than those with lower functional motor abilities. Conclusions: This study highlights the impact of motor improvements following an evidence-based community program on later cognitive development. Prospective studies investigating the mechanisms and mediation of cognitive progress in children with CP should investigate the effects of early motor interventions on long-term developmental trajectories.

24 April 2025 in Health Expectations
Verified
Journal Article
Open access
MMMelissa M Murphy
Melissa M Murphy
GCGavin Colquitt
Gavin Colquitt
PRPaige S. Ryals
Paige S. Ryals
KSKatie Shin
Katie Shin
WKWilliam C Kjeldsen
William C Kjeldsen
NMNathalie Maitre
Nathalie Maitre
Background: Cerebral palsy (CP) clinical research is fraught with challenges, in part due to health‐related disparities common among people with disabilities. Perspectives of people with lived experience of CP, clinicians and researchers vary on how to address these disparities. The present initiative explores synergies and discrepancies among stakeholders ( n = 212) representing these partner groups in perceived barriers and facilitators to high‐quality clinical CP research and robust trainee pathways. The overarching goal is to generate priority actions to empower meaningful partner group engagement in CP research and, ultimately, improve health outcomes for people with CP. Methods: Grounded in empowerment theory, mixed methods needs assessments were conducted separately with partner groups to capture perspectives on barriers and facilitators to high‐quality CP research and strong trainee pathways. Thematic analysis was applied to focus groups and interviews to identify themes and subthemes. Results: Discrepancies among partner groups emerged related to informational needs, community connection, ethical research and equitable representation in research, and fair compensation for lived experience partner engagement in the research process. Conclusions: Ongoing opportunities for researcher action to empower partner group engagement include building shared purpose, nurturing social connection within and among groups and intentional efforts to build trust and codesign studies. Patient or Public Contribution: The initiative described here was informed by caregivers of children with CP from Georgia, USA, using a community‐based participatory research (CBPR) approach. CPBR is a collaborative approach, designed to give communities, which here include people with lived experience of CP, control over research processes and outcomes. Their perspectives were essential to the premise of this study and guided data interpretation, especially with regard to how their perspectives may or may not correspond to those of CP researchers and clinicians. To ensure inclusion of all perspectives, individuals with CP were also represented in these latter two engagement groups. Finally, the design, conduct, analysis and interpretation of data were informed by a researcher and a clinician‐scientist, both of whom have lived experience as caregivers of children with CP.