Caroline Elizabeth Bulsara

Prof. Caroline Elizabeth Bulsara

orcid

Research Focus & Metrics

Academic Career Length

24Years (2003-Present)

(Calculated once Scilit publication data is synced: current year − year of first publication + 1)

Representative Publications

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30 January 2013 in Family Practice
Verified
Journal Article
Open access
PDF file
JEJ. D. Emery
J. D. Emery
FWFiona M. Walter
Fiona M. Walter
VGVicky Gray
Vicky Gray
CSCraig Sinclair
Craig Sinclair
DHDenise Howting
Denise Howting
CHC D’arcy Holman
C D’arcy Holman
Previous studies have focused on the treatment received by rural cancer patients and have not examined their diagnostic pathways as reasons for poorer outcomes in rural Australia. To compare and explore symptom appraisal and help-seeking behaviour in patients with breast, lung, prostate or colorectal cancer from rural Western Australia (WA). A mixed-methods study of people recently diagnosed with breast, lung, prostate or colorectal cancer from rural WA. The time from first symptom to diagnosis (i.e. total diagnostic interval, TDI) was calculated from interviews and medical records. Sixty-six participants were recruited (24 breast, 20 colorectal, 14 prostate and 8 lung cancer patients). There was a highly significant difference in time from symptom onset to seeking help between cancers (P = 0.006). Geometric mean symptom appraisal for colorectal cancer was significantly longer than that for breast and lung cancers [geometric mean differences: 2.58 (95% confidence interval, CI: 0.64–4.53), P = 0.01; 3.97 (1.63–6.30), P = 0.001, respectively]. There was a significant overall difference in arithmetic mean TDI (P = 0.046); breast cancer TDI was significantly shorter than colorectal or prostate cancer TDI [mean difference : 266.3 days (95% CI: 45.9–486.8), P = 0.019; 277.0 days, (32.1–521.9), P = 0.027, respectively]. These differences were explained by the nature and personal interpretation of symptoms, perceived as well as real problems of access to health care, optimism, stoicism, machismo, fear, embarrassment and competing demands. Longer symptom appraisal was observed for colorectal cancer. Participants defined core characteristics of rural Australians as optimism, stoicism and machismo. These features, as well as access to health care, contribute to later presentation of cancer.

10 October 2006 in Journal of Psychosocial Oncology
Verified
Journal Article
Closed access
CBCaroline Elizabeth Bulsara
Caroline Elizabeth Bulsara
ISIrene Styles
Irene Styles
AWAlison M. Ward
Alison M. Ward
MBMax Bulsara
Max Bulsara
Although patient empowerment is widely acknowledged as important by health professionals it remains a somewhat nebulous concept. An initial empowerment measure has been developed through an extensive review of literature combined with a series of in—depth interviews of cancer patients concerning their use of coping strategies. The results were analysed for major themes in relation to sense of control over the illness. A set of twenty—eight statements were formulated from themes into a Likert—type scale for self—completion by 100 cancer patients. The scale could be used in assessing level of empowerment amongst cancer patients thereby establishing through this information, the patient's ability to make decisions about coping with their illness.

16 December 2003 in Internal Medicine Journal
Verified
Journal Article
Closed access
PDF file
KAK. Auret
K. Auret
CBCaroline Elizabeth Bulsara
Caroline Elizabeth Bulsara
DJD. Joske
D. Joske

16 January 2004 in Journal of Clinical Nursing
Verified
Journal Article
Closed access
PDF file
CBCaroline Elizabeth Bulsara
Caroline Elizabeth Bulsara
AWAlison Ward
Alison Ward
DJDavid Joske
David Joske

16 August 2004 in Medical Journal of Australia
Verified
Journal Article
Closed access
PDF file
SHSonja E Hall
Sonja E Hall
CBCaroline Elizabeth Bulsara
Caroline Elizabeth Bulsara
MBMax K Bulsara
Max K Bulsara
DHDelia Hendrie
Delia Hendrie
CHC D'ARcy J Holman
C D'ARcy J Holman
MCMargaret R Culbong
Margaret R Culbong
Objective: To examine whether hospital patients with cancer who were identified as Indigenous were as likely to receive surgery for the cancer as non‐Indigenous patients. Design, setting and patients...

1 June 2017 in European Journal of Oncology Nursing
Verified
Journal Article
Open access
LMLeanne Monterosso
Leanne Monterosso
KTKaren Taylor
Karen Taylor
VPViolet Platt
Violet Platt
ELElizabeth Lobb
Elizabeth Lobb
MKMeinir Krishnasamy
Meinir Krishnasamy
DJDavid Joske
David Joske
To explore the post-treatment experiences and preferences for follow-up support of lymphoma survivors. Two focus groups were conducted with 17 participants to explore informational, psychological, emotional, social, practical and physical needs, 6-30 months post-treatment for lymphoma. Perceptions regarding a potential model of survivorship care were also elicited. Thematic content analysis revealed five key themes: Information; Loss and uncertainty; Family, support and post-treatment experience; Transition, connectivity and normalcy, and Person-centred post-treatment care. Participants described a sense of loss as they transitioned away from regular interaction with the hospital at the end of treatment, but also talked about the need to find a "new normal". Establishing post-treatment support structures that can provide individualised information, support, reassurance and referrals to community and peer support were identified as a helpful way to navigate the transition from patient to post-treatment survivor. Participants in our study articulated a need for a flexible approach to survivorship care, providing opportunities for individuals to access different types of support at different times post-treatment. Specialist post-treatment nurse care coordinators working across acute and community settings may offer one effective model of post-treatment support for survivors of haematological malignancies.