* The International Work Group for Therapeutic Residential Care convened an International Summit on ‘Pathways to Evidence-Based Practice’ at Loughborough University (GBR), Centre for Child and Fami...

To understand the normalization process in families with hemophiliac children, and to explore the impact of two different therapeutic regimes on it (on-demand therapy and prophylaxis), we conducted a two-phase study using semistructured interviews. In the course of the first phase, we interviewed 13 parents belonging to 10 families with hemophiliac children in on-demand therapy. In the second phase, 5 years later, we repeated the interviews with three families who began prophylaxis at different times. We analyzed the interviews using text analysis software. The results show very different representations of hemophilia and daily life. Normalization processes involve the overcoming of a divided conception of life, and encourage the integration of care practices within daily life. Moreover, in our article we suggest that although prophylaxis facilitates the recovery of a regular family routine, it alone cannot produce normalization.

Shared topics on the experience of people with haemophilia living in the UK and the USA and the influence of individual and contextual variables: Results from the HERO qualitative study

In Italy, the evaluation of residential care is particularly important in view of: (1) the process of deinstitutionalization; (2) the power of the public authorities to devolve the running of services, including residential communities, to private partners. The literature has stressed the importance of involving multiple stakeholders in the design and implementation of evaluative research. This article summarizes a research plan for the evaluation of child and adolescent residential communities based on the theoretical framework of developmental psychopathology and Bronfenbrenner's ecological model of human development. A study is presented on the perception that adolescents in care have of the community's relational climate—analyzed by way of everyday routines and communications with adults—and of the effects of the intervention. The results corroborate the hypothesis that the relational climate in a community is a good predictor of the efficacy of residential care.