Background: As the life expectancy of adults (aged ≥ 18 years) with Down syndrome increases for a plethora of reasons including recognition of rights, access, and technological and medical advances, there is a need to collate evidence about their quality of life. Objective: Using Schalock and Verdugo’s multidimensional quality of life assessment model, this systematic review aimed to identify, synthesise and integrate the quantitative and qualitative evidence on quality of life in adults with Down syndrome via self-and proxy-reporting. Methods: Five databases were systematically searched: MEDLINE, CINAHL, PsycINFO, Scopus, and Web of Science to identify relevant articles published between 1980 and 2022 along with grey literature and reference lists from relevant studies. A mixed methods systematic review was performed according to the Joanna Briggs Institute methodology using the convergent integrated approach. The review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Results: Thirty-nine studies were included: 20 quantitative, 17 qualitative, and 2 mixed methods studies. The synthesised findings were grouped into the 8 core domains of quality of life: personal development, self-determination, interpersonal relations, social inclusion, rights, emotional, physical and material well-being. Of the 39 studies, 30 (76.92%) reported on emotional well-being and 10 (25.64%) on rights. Only 7 (17.94%) studies reported that adults with Down syndrome have a good quality of life centred around self-determination and interpersonal relations. Most adults with Down syndrome wanted to become more independent, have relationships, participate in the community, and exercise their human rights. Self-reported quality of life from adults with Down syndrome was rated higher than proxy reported quality of life. Discrepancies in quality of life instruments were discovered. Conclusion: This review highlighted the need for a better systematic approach to improving the quality of life in adults with Down syndrome in targeted areas. Future research is required to evaluate self-and proxy-reporting methods and culture-specific quality of life instruments that are more appropriate for adults with Down syndrome. In addition, further studies should consider including digital assistive technologies to obtain self-reported quality of life data in adults with Down syndrome. International prospective register of systematic reviews registration number: CRD42019140056.

This article examines disabled people’s experiences of hate crime during a period of austerity and welfare reform. Narrative interviews were conducted with 12 victims of disability hate crimes in the United Kingdom who experienced a spectrum of targeted, disablist violence and harassment, from name-calling and verbal abuse to physical and sexual violence and damage to property. Participants expressed frustration and disappointment with inadequate, offensive and inappropriate responses from the criminal justice system. This resulted in a lack of confidence in reporting their experiences to police in future. Evidence from participant stories encapsulates the diversity of disability hate crime perpetrators, from neighbour to stranger, resulting in a lack of safe space in which disabled people can live and work. Examination of these findings illustrates the impact of contemporary structural discourses of conditionality and stigma upon disabled people, including acceptance of and resilience to hate crimes.

This article chronicles the present situation of coronavirus disease 2019 (COVID‐19) on individuals with intellectual and developmental disabilities (IDD) in Nigeria. A systematic search was conducted on three bibliographic databases: MEDLINE Complete, Web of Science and Scopus, and supplemented with grey literature searches to assess studies on the effect of COVID‐19 on these individuals in Nigeria with data on this group from December 2019 to July 2020. There were no studies found concerning individuals with IDD in Nigeria. This article argues for an urgent call to action by Nigerian policymakers to make data available to help understand the impact of COVID‐19 and to develop and implement appropriate interventions. This article provides steps to support and care for these individuals in Nigeria. Forecasting models are recommended which offer better approaches in yielding accurate predictions and provide valuable decisions in the event of future threats and infectious disease outbreak in Nigeria.

This research draws upon an international study investigating domestic violence perpetrator support services from five European countries, which was conducted during 2020. Front-line professionals from the partner countries took part in focus groups which focused on the positives and negatives of perpetrator support provision. This article reports specifically on findings that pertained to the impact of the COVID-19 pandemic. All of the participating countries, the UK, Italy, Romania, Greece and Cyprus, reported increases in domestic violence and abuse, as a result of ‘lockdowns’, home quarantines and restrictions of movement on the general population. Alongside this increasing level of reported gender-based violence, many perpetrator intervention and prevention programmes have had to adapt to online or alternative methods of service provision. In this article we use intersectionality to analyse the impact of remote service delivery. We raise key equality issues in the shift to remote working, which risks having ableist ramifications. We conclude by emphasising the importance of increased and sustained funding that acknowledges the service increases during the pandemic.

This research explored the experiences of LGBTQIA+, black and ethnic minority (BME), and disabled victims of domestic abuse due to the frequency of abuse in these populations and bespoke needs they may have. Data were collected via an online survey (n = 317), a focus group with professionals (n = 2), and interviews with victims/survivors of domestic abuse (n = 2). Many victims/survivors articulated difficulties in accessing support for many reasons, including individual and structural barriers such as embarrassment, stigma, shame, fear and not being aware of what support is available. Whilst good practice was reported, examples of secondary victimization towards victims/survivors by individuals, professionals and organizations were recounted. Many barriers were identified; for example, there was inappropriate provision in refuges or shelters for LGBTQIA+ groups or disabled people. Disabled victims experienced additional barriers if their abuser was also their carer. BME groups may have additional language difficulties as well as cultural stigma and pressure to stay with their abuser. Recommendations for practice include the need for enhanced multi-agency training and recognition of abuse; crime against victims/survivors being supported by someone with the same cultural background; easier access to interpreters; and more appropriate refuge or alternative housing options.