Introduction: The number of people with dementia has been increasing. Evidence shows that over 16 million family caregivers provide unpaid care for people with dementia. However, family caregivers experience several challenges throughout their caregiving role, including that of social isolation. Although social isolation in people with dementia has been well documented, social isolation in their family caregivers has not received as much scholarly attention. This scoping review sought to address this dearth of research through the following research question: “What are themes, concepts, or constructs that describe social isolation of family caregivers for people living with dementia?”. Method: An electronic search was conducted in PubMed, PsycInfo, and Scopus, using the following Boolean search phrase: dementia AND “social isolation” AND (caregiver OR carers). Content analysis was conducted to identify relevant themes. Findings: The initial search yielded 301 studies. Through screening processes, 13 studies were eligible for review. Based on a synthesis of evidence, five themes emerged from the data: disease progression, psychological state, social networks, social supports, and technology. Discussion: This review demonstrates that caregiving is related to social isolation in family caregivers of people living with dementia. The experience of social isolation was related to the progression of dementia, psychological states, and lack of supports. In contrast, social supports, social networks, and using technology may reduce social isolation. Identifying themes provides policy and practice implications, such as using information and communication technology to create and redefine social networks.
17 January 2018 in Canadian Journal on Aging / La Revue canadienne du vieillissement
RÉSUMÉ: Les personnes âgées dont la capacité de prise de décision est réduite et qui n’ont pas de soutien familial ou d’amis pour les aider à compenser ces déficits sont dites « solitaires » et nécessitent un tuteur public. Le but de cette étude était de recenser les publications avec comités de pairs et la littérature grise afin d’examiner la portée des travaux de recherches réalisés jusqu’à ce jour concernant les personnes âgées solitaires au Canada et aux États-Unis. Nous n’avons recensé que peu d’études sur ce sujet. Aucune étude ou rapport canadien n’a été trouvé. Les personnes âgées solitaires étaient plus avancées en âge, sans enfants ou avec peu d’enfants, et leurs troubles cognitifs étaient plus sévères, comparativement aux personnes âgées non solitaires. Ces résultats démontrent une rareté des études sur les personnes âgées solitaires. Il est urgent que davantage de recherches soient réalisées avec des collectes de données standardisées concernant la tutelle chez les personnes âgées solitaires afin de faciliter la réalisation d’études sur la prévalence de la tutelle publique au Canada.
Background and Objectives: Research shows that living in segregated neighborhoods may have deleterious health outcomes via social, physical, and socioeconomic contexts that deepen existing inequities. However, there has been limited scholarship examining the effects of segregation on older adults, despite an increasing focus on aging in place. Guided by the Ecological Model of Aging, we examined the effects of segregation on older adults’ self-rated health and mental health, accounting for both individual characteristics and neighborhood opportunities and risks (e.g., social cohesion) and the potential moderating role of race and economic vulnerability. Research Design and Methods: We used data from the first 4 rounds of the National Health and Aging Trends Study (2011–2014) merged with tract-level census data for a final sample size of 3,084 community-dwelling older adults in urban areas. We conducted multivariate regression analyses after conditioning on residential location selection variables. Results: There was no significant association between neighborhood segregation and self-rated health or between segregation and anxiety and depression symptoms. Consistent with the literature, perceived social cohesion was protective of health in each model. Discussion and Implications: Our findings highlight the need for more rigorous research on segregation and older residents that utilize longitudinal and spatial data. Our findings also have implications for policies and programs that aim to support the ability to age in place for older adults who have different racial identities and live in different neighborhood contexts. Because social cohesion can be a protective factor for older adults’ health and mental health, policymakers and practitioners should support initiatives to increase social cohesion.
1 July 2021 in Journal of Gerontological Social Work
This systematic review examined the factors associated with social work students’ attitudes toward older adults or working with older adults from the literature published in the last decade. Twelve peer-reviewed empirical studies published between 2011 and 2020 were included for review. Results suggest that both direct and indirect exposures to older adults positively changed social work students’ attitudes. While infusing exposure to older adults into courses appeared effective in modifying students’ attitudes, inconsistent measurement and lack of information across studies made it impossible to compare the effectiveness of interventions across studies. Implications for gerontological social work education are discussed.
25 October 2023 in The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences
Objectives: Caregivers report limited freedom to engage with others, participate in physical activities, pursue leisure activities, and sleep. Few studies have focused on caregivers’ time use across different activities, particularly how different patterns of time use are associated with well-being. This study aimed to (a) identify time-use profiles of family caregivers of older adults and (b) examine associations between identified time-use profiles and caregiver well-being. Methods: We analyzed data from 1,640 family caregivers of community-dwelling older adults from Round 7 (2017) of the National Study of Caregiving and the National Health and Aging Trends Study. Latent profile analysis was used to estimate time-use profiles based on 4 indicators (i.e., regenerative time, discretionary time, eldercare-related committed time, non-eldercare committed time). We conducted regressions to examine the relationship between the latent profiles and well-being outcomes. Results: Three profiles of caregivers emerged based on time-use patterns. The Overloaded profile (20%) spent the greatest time in non-eldercare committed activities, such as household activities and paid work. The Flexible profile (49%) spent the most amount of time in social activities and physical activities, and the least amount of non-eldercare committed time compared to the other 2 caregiver types. Lastly, the Occupied profile (31%) allocated time relatively evenly in all activities. When comparing well-being outcomes, caregivers in the Flexible profile had lower levels of anxiety than the Occupied profile. Discussion: The profiles acknowledge the diverse experiences of caregivers, underscoring the significance of granting them greater latitude in balancing eldercare responsibilities and personal life for enhanced well-being.
8 September 2022 in The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences
Objectives: Paid care provided in the home includes important support services for older adults with dementia such as cleaning and personal care assistance. By reducing unmet needs, these services could delay the transition to residential long-term care, but access may differ across racial groups. This study examined the relationship between paid care and transitioning out of the community among Black and White older adults with dementia.Methods: Using data from 303 participants (29.4% Black) with probable dementia in the 2011 National Health and Aging Trends Study, competing risk hazards models estimated the association between receiving paid care at baseline and the probability of transitioning out of the community over 8 years (through 2019). Covariate selection was guided by the Andersen model of health care utilization.Results: Paid care was associated with lower risk of transitioning out of the community (subhazard ratios [SHR] = 0.70, 95% CI [0.50, 0.98]). This effect was similar after controlling for predisposing factors and most prominent after controlling for enabling and need for services factors (SHR = 0.65, 95% CI [0.44, 0.95]). There was no racial difference in the use of paid care despite evidence of greater care needs in Blacks. Furthermore, Black participants were less likely to transition out of the community than Whites.Discussion: Paid care services may help delay transitions out of the community. Future research should seek to explain racial differences in access to and/or preferences for home-based, community-based, and residential care.