Sara Olsson

Ms. Sara Olsson

orcid

Research Focus & Metrics

Academic Career Length

4Years (2023-Present)

(Calculated once Scilit publication data is synced: current year − year of first publication + 1)

Representative Publications

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25 June 2023 in Journal of Advanced Nursing
Verified
Journal Article
Open access
SOSara Olsson
Sara Olsson
JOJulia Otten
Julia Otten
MBMadeleine Blusi
Madeleine Blusi
ELElena Lundberg
Elena Lundberg
ÅHÅsa Hörnsten
Åsa Hörnsten
Aim: To explore young adults' experiences of living with type 1 diabetes in the transition to adulthood, including experiences of the transfer from paediatric to adult care.Design: A qualitative approach was used.Method: Ten young adults, six women and four men, aged 19–29 years, participated. Participants were recruited at their regular diabetes clinic from spring 2021 to spring 2022. Semi‐structured interviews were transcribed and analysed using qualitative content analysis.Findings: Dreaming of being nurtured towards self‐reliance was the overarching theme. Personal experiences of the transition to adulthood, including the transfer from paediatric to adult care, were described in terms of struggling to find balance in daily life, dealing with feelings of being different, being gradually supported to achieve independence, and wishing to be approached as a unique person in healthcare.Conclusion: In healthcare, it is important to emphasize not only diabetes‐related factors but also emotional and psychosocial aspects of life connected to the transition to adulthood, including the transfer to adult care. The young adults wished to be seen as unique persons in healthcare during their emerging adulthood and should therefore be supported to achieve self‐reliance through personal preparations for new challenges and for the consequences of transitioning to adulthood. Specialist nurses can provide appropriate knowledge and leadership.Implications for the Profession: These findings can guide nurse specialists in support for emerging adults to achieve self‐reliance and indicate the importance of person‐centred care when experiencing transition and transfer.Reporting Method: The study adhered to EQUATOR guidelines, and the COREQ checklist for qualitative studies was used as the reporting method.

26 July 2025 in Children
Verified
Journal Article
Open access
PDF file
ÅCÅsa Carlsund
Åsa Carlsund
SOSara Olsson
Sara Olsson
ÅHÅsa Hörnsten
Åsa Hörnsten
Background: Parents of children with type 1 diabetes play a key role in managing their child’s self-management, which can be stressful and burdensome. High involvement can lead to reactions such as emotional, cognitive, and physical exhaustion in parents. Understanding parents’ psychosocial impact due to their child’s disease is crucial for the family’s overall well-being. The purpose of this study was to describe stress and burden experienced by parents in families with children living with type 1 diabetes. Methods: This study utilized a qualitative approach, analyzing interviews with 16 parents of children aged 10 to 17 years living with T1D through qualitative content analysis. The data collection occurred between January and February 2025. Results: Managing a child’s Type 1 diabetes can be tough on family relationships, affecting how partners interact, intimacy, and sibling relationships. The constant stress and worry might leave parents feeling exhausted, unable to sleep, and struggling to think clearly, on top of the pain of losing a normal everyday life. The delicate balance between allowing a child with type 1 diabetes to be independent and maintaining control over their self-management renders these challenges even more demanding for the parents. Conclusions: Parents’ experiences highlight the need for robust support systems, including dependable school environments, trustworthy technical devices, reliable family and friends, and accessible healthcare guidance. These elements are essential not only for the child’s health and well-being but also for alleviating the emotional and practical burdens parents face.

1 January 2025 in Nursing Research and Practice
Verified
Journal Article
Open access
SOSara Olsson
Sara Olsson
TWT. Willman
T. Willman
ÅHÅ. Hörnsten
Å. Hörnsten
Julia OttenJulia Otten
Julia Otten
MBMadeleine Blusi
Madeleine Blusi
ÅCÅsa Carlsund
Åsa Carlsund
Aim: To explore and describe the experiences of Swedish diabetes specialist nurses in supporting emerging adults with type 1 diabetes mellitus after the transfer from paediatric to adult care. Background: The transfer from paediatric to adult care for emerging adults living with type 1 diabetes mellitus is a critical period that can impact their well‐being and long‐term health outcomes. Diabetes specialist nurses play a crucial role in supporting these individuals during the transitions in emerging adulthood. However, their experiences and challenges in providing optimal support have not been extensively studied. Method: We used a qualitative descriptive design. Ten diabetes nurse specialists from six different Swedish hospitals participated in recorded individual interviews by video link or face‐to‐face using a semistructured interview guide. Data collection spanned from May to December 2023, and the data were analysed with qualitative content analysis. Informed consent was obtained. Results: The main theme of the results was ambition to optimise individual support but with hands tied by structural barriers with three additional themes concentrating on the individual and the relationship, emphasising long‐term objectives in self‐management support, and struggling with obstacles to providing accessible care. The results indicate that while diabetes specialist nurses focus on building strong relationships and emphasise long‐term goals in self‐management support, they encounter significant obstacles when providing accessible care after the transfer to adult care. Conclusion: Diabetes specialist nurses highlighted a need for education and training that extends beyond simply managing the medical condition, considering various life transitions and psychosocial challenges. The findings indicate that future standards for supportive interventions should prioritise existential and psychosocial factors. There is a lack of systematic national consensus on collaboration, as the diabetes specialist nurses reported differing experiences regarding transfers and continuity of care.

4 December 2025 in Frontiers in Clinical Diabetes and Healthcare
Verified
Journal Article
Open access
PDF file
ÅCÅsa Carlsund
Åsa Carlsund
SOSara Olsson
Sara Olsson
DRDavid Rudilla
David Rudilla
UIUlf Isaksson
Ulf Isaksson
Introduction: Young adults living with type 1 diabetes face unique challenges as they transition to greater independence, balancing diabetes management in all other dimensions of life. In Sweden, the transfer from pediatric to adult diabetes care at the age of 18 adds to these challenges. This study aimed to translate and evaluate the Swedish version of the T1DAL (Type 1 Diabetes and Life) self-report questionnaire for young adults living with type 1 diabetes. Method and Materials: The T1DAL questionnaire was translated into Swedish and was completed by 191 young adults aged 18–25 who were registered at a diabetes clinic in three Swedish hospitals. An expert group tested content validity. To determine the number of underlying factors, a parallel analysis (PA) was conducted. The questionnaire’s latent structure was further examined through exploratory factor analysis, in which the items were constrained to a four-factor solution as recommended and found in the original version. Results: The content validity index of the total score was 0.94. The response distribution analysis revealed the presence of floor or ceiling effects. An EFA with a four-factor solution was conducted, yielding a Model Fit Measure with a χ² of 326.68 and df = 249, resulting in a cmin/df of 1.31, an RMSEA of 0.04, and a TLI of 0.92. Internal consistency was assessed for the subscales suggested by the factor structure, based on the items that loaded onto each factor. Cronbach’s alpha values ranged from 0.75 to 0.89, indicating acceptable to high internal consistency. The four-factor solution explained 45.04% of the total variance. Conclusion: The Swedish T1DAL questionnaire showed good factorial validity and reliability. The Swedish version requires further testing with potential item reduction; however, it is still expected to be valuable in assessing health-related quality of life among young adults living with type 1 diabetes. Clinical implications: The Swedish T1DAL questionnaire, particularly its domains related to emotional experiences, managing diabetes effectively, and peer relationships outlines the characteristics of young adulthood and can be used to empower the target group, and is expected to be feasible to implement in clinical practice.

11 June 2026 in Nursing Open
Verified
Journal Article
Open access
PDF file
SOSara Olsson
Sara Olsson
ÅCÅsa Carlsund
Åsa Carlsund
MBMadeleine Blusi
Madeleine Blusi
JOJulia Otten
Julia Otten
ELElena Lundberg
Elena Lundberg
ÅHÅsa Hörnsten
Åsa Hörnsten
Aim: To describe experiences of being a parent of a child with type 1 diabetes during adolescence and emerging adulthood, including during the transfer from paediatric to adult care. Design: A qualitative approach was used. Methods: Individual interviews started in February 2022 and continued to February 2023. Fourteen parents of emerging adults participated. Data were analysed using qualitative content analysis. Findings: Being a parent of a child with type 1 diabetes involved struggling to accept the loss of control and slowly loosening the ties in the close parent–child relationship during adolescence and emerging adulthood. Parents were gradually reconciling with the illness that was turning the world upside down, making efforts to become a close‐knit family team, relinquishing the priorities of supervision and instead cherishing the relationship, processing that the emerging adult is flying the nest and feeling abruptly cut off by healthcare during the transfer to adult care. Conclusion: The findings were interpreted as outlining a transitional process among parents that started in the onset period, continuing throughout the life span to their children's emerging adulthood. Parents also transition into new roles along with their children. Parents' experiences of complex daily life, multiple transitions and the abrupt transfer from paediatric to adult care are important to acknowledge. Clinical Implications for the Profession: Transfer is suggested to be carried out with consideration for the individuals' prerequisites and desires. Parents are important stakeholders guiding the transfer. In adult care, a more family‐centred approach could help parents cope with new challenges in joint clinical visits. Parents should be welcomed to joint clinical visits in adult care with consent and parents could benefit from being offered support from nurses independently. Reporting Method: The study adhered to EQUATOR guidelines and the COREQ checklist for qualitative studies was used as the reporting method. Patient or Public Contribution: No patient or public contribution.