MD, PhD. She works for the Veneto region RD registry since its establishment. She has a PhD in Epidemiology and Health Planning. In charge of the RD registry and of the Registry monitoring growth hormone treatments. She is responsible of the inventory of RD monitored by the registry, of the classification and coding issues. She has been involved in all the activities carried out within the context of the WP5 of the RD-action (2015-2018) and in other national activities and projects on rare diseases. Representative for the RD Coordinating Center in the European network of rare disease helplines (ENRDHL).