Autism Spectrum Disorder (ASD) has become more prevalent globally. The disorder is predominantly characterised by low social skills noted explicitly in people with High Functioning Autism Spectrum Disorder (HFASD). The individuals usually possess a normal or superior intelligence quotient (IQ) but the disability impedes the achievement of their actual high potential, hence compromising their quality of life (QoL). Managing adversities encountered by children with HFASD often compromises the QoL of the entire family. Thus, this study aimed to identify specific domains of QoL among mothers of high-functioning autistic adolescents. The study assessed seven mothers of adolescents with HFASD using a semi-structured interview format. A thematic qualitative analysis was conducted to analyse the data. The results suggested that mothers perceived their QoL based on physical and emotional well-being, material well-being, interpersonal relationship, and environmental well-being. Intervention for HFASD is multidisciplinary, which targets a broad spectrum of symptoms and skills deficits and customises the programme to meet each individual’s different needs. Nonetheless, intervention facilities in Malaysia are seriously limited, particularly in supporting QoL for children with HFASD. Therefore, by identifying the domains of QoL would improve the mothers’ resilience in raising their children with HFASD.
30 November 2023 in Psikohumaniora: Jurnal Penelitian Psikologi
The transition to young adulthood brings distinctive challenges for high-functioning autism spectrum disorder (HFASD) children and their families, especially post-formal education. This qualitative case study research aims to explore hurdles faced by mothers navigating HFASD adolescents. The result shows that financial strain, stigma, and loneliness loom large, compounded by emotional crises tied to uncertainty and stress about their children's future. Mothers advocate for multiple work opportunities and independence, underscoring a notable gap between HFASD teens' needs, available services, and community resources. The study enlightened mothers and inspired proactive measures, emphasizing the imperative for a collective, interdisciplinary effort to align services comprehensively—addressing residential, employment, and social aspects—to enhance the quality of life for HFASD individuals.