Providing and maintaining hospice and palliative care during disasters poses significant challenges. To understand the impact of disasters on the provision of hospice and palliative care and the disaster preparedness initiatives in the field, a systematic review was undertaken. Eligibility criteria for the selection of studies were: peer-reviewed original research papers addressing HPC during disasters published between January 2001 and February 2023 in English. The databases CINAHL, MEDLINE, APA PsycInfo, APA PsycArticles, and SocINDEX were searched with textword and MeSh-terms between October 2022 and February 2023. The Mixed Methods Appraisal Tool (MMAT) was used to assess the quality of the studies. Content analysis was performed. The results are presented in the form of a narrative synthesis. Of 2581 studies identified, 57 met the inclusion criteria. Most studies were published recently on the impact of the COVID-19 pandemic. Four main themes were identified in the literature: disruption of the system, setting-specific differences, emotional challenges, and system adaptation. Overall, strategies to tackle hospice and palliative care needs have been poorly integrated in disaster preparedness planning. Our findings highlight the need to strengthen the resilience of hospice and palliative care providers to all types of disasters to maintain care standards.
Introduction: People with bleeding disorders (PwBd) and their caregivers face many challenges in developing viable self‐management strategies for living with the condition. Nurse‐led education can support them to overcome these challenges. However, it is often unclear what educational needs are addressed, how nurses educate PwBd and what didactic concepts they follow.Aim: To gain deeper insights into nurse‐led patient education in haemophilia care and provide a basis for a more systematic and evidence‐based approach to this task.Methods: A scoping review methodology was used. A systematic search for relevant publications on this topic was conducted in various databases between November 2020 and April 2021. Data sets were analysed following the PRISMA‐ScR‐checklist and using content analysis.Results: Of 588 studies identified, 23 sources of evidence met the inclusion criteria. The educational needs of PwBd and their families are extensive, multifaceted, and variable but rarely assessed systematically. These needs were met at certain times throughout their lifetimes. Nurse‐led education differed in content, duration, and modality, including interventions such as information, consultation and instruction. An improvement in treatment‐oriented self‐management and self‐efficacy was the most reported outcome. The didactic concepts on which the educational interventions were based were rarely specified.Conclusions: There is a lack of systematic approaches in assessing and addressing the educational needs of PwBd and their caregivers. High variability was found in the literature regarding nurse‐led patient education in haemophilia care. This suggests that more research is needed on this topic – not least on the interventions' conceptual foundations and impact models.
Despite the proximity of both countries, Danes and Germans differ in the level of trust in their government. This may play a role with respect to the disruptive impact of the COVID-19 pandemic on university students. This study investigated the association between trust in governmental regulations, trust in university regulations, risk perceptions, and academic frustration among Danish and German students. As part of the COVID-19 International Student Well-being Study, an online survey was distributed among university students in participating European and non-European universities. In Denmark, 2945 students and Germany, 8725 students responded to the questionnaire between May and July 2020. Students from both countries reported approximately the same level of academic frustration concerning their progress and quality of education. However, German students perceived a higher risk of contracting SARS-CoV-2 compared to Danish respondents. Danish students showed higher trust in their government’s COVID-19 regulations than German students. Lower trust in government and university COVID-19 regulations and higher risk perception were associated with higher academic frustration. These results indicate that the level of trust in COVID-19 regulations might have an impact the overall frustration of students regarding their study conditions.
Background: Given the global increase in disasters, nurses play a critical role in ensuring the protection of individual and public health even under adverse circumstances. However, in Germany, Austria, and Switzerland, the role and mandate of nurses in disasters are unclear, which can lead to uncertainty among disaster responders, decision‐makers, and nurses themselves. Aim: The RAP KAT study (The Role and Mandate of Nurses in Emergencies, Crises, and Disasters) aimed to examine the role and mandate of nurses in disasters from the perspective of experts across three German‐speaking countries. Methods: A modified multi‐stage Delphi design was conducted, using the DELPHISTAR checklist to report on this study. Following an initial round‐table symposium with experts from the field of nursing, three increasingly standardized online surveys were conducted. The panel of participants was gradually expanded to include experts from related fields and professions. Results: Participants from German‐speaking countries strongly agreed on the need to clearly define and codify the role and mandate of nurses in disaster situations. Experts, particularly nurses, called for the inclusion of disaster nurses in leadership and decision‐making bodies. However, participants also noted that disaster nursing competencies in these countries are not yet sufficiently developed to meet the expected standards. Conclusion: To ensure that nurses can respond appropriately to disasters, their role and mandate must be defined, codified, and systematically implemented. Additionally, disaster nursing competencies should be systematically developed through education. Implications for nursing and nursing policy: The responsibility for defining the role and mandate of nurses lies with the profession itself. Nurses must reach a consensus with policymakers on these definitions and ensure that they are codified, allowing healthcare systems to implement them effectively.
Given the global increase in disasters, nurses play a critical role in ensuring the protection of individual and public health even under adverse circumstances. However, in Germany, Austria, and Switzerland, the role and mandate of nurses in disasters are unclear, which can lead to uncertainty among disaster responders, decision-makers, and nurses themselves. The RAPKAT study (The Role and Mandate of Nurses in Emergencies, Crises, and Disasters) aimed to examine the role and mandate of nurses in disasters from the perspective of experts across three German-speaking countries. A modified multi-stage Delphi design was conducted, using the DELPHISTAR checklist to report on this study. Following an initial round-table symposium with experts from the field of nursing, three increasingly standardized online surveys were conducted. The panel of participants was gradually expanded to include experts from related fields and professions. Participants from German-speaking countries strongly agreed on the need to clearly define and codify the role and mandate of nurses in disaster situations. Experts, particularly nurses, called for the inclusion of disaster nurses in leadership and decision-making bodies. However, participants also noted that disaster nursing competencies in these countries are not yet sufficiently developed to meet the expected standards. To ensure that nurses can respond appropriately to disasters, their role and mandate must be defined, codified, and systematically implemented. Additionally, disaster nursing competencies should be systematically developed through education. The responsibility for defining the role and mandate of nurses lies with the profession itself. Nurses must reach a consensus with policymakers on these definitions and ensure that they are codified, allowing healthcare systems to implement them effectively.
Background: Hospices and specialized palliative home care services provide care for people with serious, life-threatening illnesses and those at the end of their lives. Disasters cause severe disruptions that exceed the capacity of structures and processes in a society. Given the increasing frequency and impact of disasters, it is crucial that these services maintain their functions for as long as possible, even under adverse conditions, to protect the people entrusted to their care. The aim of this research was therefore to examine whether and to what extent hospices and specialized palliative home care services in Germany are already prepared for disasters. Methods: We used an explorative, quantitative cross-sectional design. The intention was to conduct a full nationwide survey among nurses in team-leading roles in all hospices and specialized palliative home care services in Germany. A self-developed semi-standardized online questionnaire assessed perceived disaster awareness, organizational preparedness, and staff preparation. Descriptive statistics were used to analyze the survey data. Results: A total of 189 nurses in team-leading roles from all parts of Germany responded to the online survey (29% response rate). Overall, respondents considered disaster preparedness to be an important topic, but this has rarely been reflected in corresponding initiatives. 62% of respondents stated that their service does not have a business continuity plan, or that they were unaware of such a plan. An above-average share of respondents expressed the view that the nursing staff of these services should fulfil additional tasks before, during, and after disasters to ensure the safety of those in their care. Although nurses were generally considered competent to carry out these tasks, 70% of respondents agreed that further preparation for disasters was necessary. Conclusions: Our survey data suggest that hospices and specialized palliative home care services in Germany need to improve their disaster preparedness to ensure they can continue to provide specialized hospice and palliative care in times of adversity. This requires organizational initiatives in collaboration with other healthcare and civil protection services, as well as personnel development measures. Nurses in leadership positions could play a key role in this.