Alice Faux-Nightingale

Dr. Alice Faux-Nightingale

orcid

Research Focus & Metrics

Academic Career Length

6Years (2021-Present)

(Calculated once Scilit publication data is synced: current year − year of first publication + 1)

Representative Publications

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23 August 2022 in Heliyon
Verified
Journal Article
Open access
AFAlice Faux-Nightingale
Alice Faux-Nightingale
FPFraser Philp
Fraser Philp
DCDarren Chadwick
Darren Chadwick
BSBaldev Singh
Baldev Singh
APAnand Pandyan
Anand Pandyan
As eHealth and use of information and communication technologies (ICT) within healthcare becomes widespread, it is important to ensure that these forms of healthcare are accessible to the users. One factor that is key to accessing eHealth is digital health literacy. This scoping review assesses available tools that can be used to evaluate digital health literacy. A systematic literature search was made in MEDLINE, CINAHL, APA PsychInfo, Ageline, AMED, and APA PsychArticles to present the tools currently in use to assess digital health literacy. A qualitative synthesis of the evidence was carried out using a data charting form created for this review. Extracted data included details of the population of investigation and digital health literacy tool used. A report was produced following PRISMA-ScR guidelines. In total, 53 papers with adult participants and 3 with adolescent participants (aged between 12 and 19 years) were included in the scoping review. 5 questionnaires were identified that measured digital health literacy or attitudes towards the internet, of which the eHealth Literacy Scale (eHEALS) was the most commonly used questionnaire for both adults and children. Two children’s questionnaires were often accompanied by a second task to verify the accuracy of the responses to the eHEALS questions. eHEALS is the most commonly used method to assess digital health literacy and assess whether an individual is able to engage actively with eHealthcare or virtual resources. However, care needs to be taken to ensure that its administration does not exclude digitally disadvantaged groups from completing it. Future research would benefit from assessing whether digital health literacy tools are appropriate for use in clinical settings, working to ensure that any scales developed in this area are practical and can be used to support the allocation of resources to ensure that people are able to access healthcare equitably.

1 November 2023 in BJGP Open
Verified
Journal Article
Open access
PDF file
AFAlice Faux-Nightingale
Alice Faux-Nightingale
BSBenjamin Saunders
Benjamin Saunders
CBClaire Burton
Claire Burton
CCCarolyn A Chew-Graham
Carolyn A Chew-Graham
GSGlenys Somayajula
Glenys Somayajula
VWVictoria Welsh
Victoria Welsh
Background: Long COVID, the patient-preferred term, describes symptoms persisting after an acute episode of COVID-19 infection. Symptoms in children and young people (CYP) can affect daily routine, with broader impacts on education, health-related quality of life, and social activities, which may have long-term effects on health and wellbeing.Aim: To explore the lived experiences and care needs of CYP with long COVID from the perspectives of CYP with long COVID, their parents, and professionals associated with the care of children and families living with the condition.Design & setting: CYP and their parent or carer were invited for interview following participation in a cohort study, which recruited the sample from a primary care setting.Method: Interviews were carried out with four CYP with long COVID (all female, aged 10–17 years); three interviews included a parent. Two focus groups were conducted, which included seven professionals involved with care of CYP or long COVID, from a range of disciplines. Interviews and focus groups were transcribed verbatim, and data analysed thematically using constant comparison techniques.Results: The three main themes presented are as follows: living with long COVID; uncertainty surrounding long COVID; and seeking help for symptoms.Conclusion: Long COVID can severely impact the lives of CYP and their families. CYP and their families need to be listened to by professionals and have any uncertainties acknowledged. It is imperative that agencies working with them understand the condition and its impact, and are able to offer support where needed.

27 February 2021 in BMC Medical Informatics and Decision Making
Verified
Journal Article
Open access
PDF file
FPFraser Philp
Fraser Philp
AFAlice Faux-Nightingale
Alice Faux-Nightingale
Sandra I WoolleySandra I Woolley
Sandra I Woolley
EQEd de Quincey
Ed de Quincey
APAnand Pandyan
Anand Pandyan
Background: Currently the diagnosis of shoulder instability, particularly in children, is difficult and can take time. These diagnostic delays can lead to poorer outcome and long-term complications. A Diagnostic Decision Support System (DDSS) has the potential to reduce time to diagnosis and improve outcomes for patients. The aim of this study was to develop a concept map for a future DDSS in shoulder instability. Methods: A modified nominal focus group technique, involving three clinical vignettes, was used to elicit physiotherapists decision-making processes. Results: Twenty-five physiotherapists, (18F:7 M) from four separate clinical sites participated. The themes identified related to ‘Variability in diagnostic processes and lack of standardised practice’ and ‘Knowledge and attitudes towards novel technologies for facilitating assessment and clinical decision making’. Conclusion: No common structured approach towards assessment and diagnosis was identified. Lack of knowledge, perceived usefulness, access and cost were identified as barriers to adoption of new technology. Based on the information elicited a conceptual design of a future DDSS has been proposed. Work to develop a systematic approach to assessment, classification and diagnosis is now proposed. Trial Registraty This was not a clinical trial and so no clinical trial registry is needed.

2 October 2024 in Health Expectations
Verified
Journal Article
Open access
SBSarah Akhtar Baz
Sarah Akhtar Baz
MWMirembe Woodrow
Mirembe Woodrow
DCDonna Clutterbuck
Donna Clutterbuck
CFChao Fang
Chao Fang
JMJordan Christina Ruth Mullard
Jordan Christina Ruth Mullard
NANisreen Alwan
Nisreen Alwan
Introduction: Organised by the ‘Qualitative Long Covid Network’, a workshop for qualitative Long COVID (LC) researchers, LC charity representatives and people with LC took place in June 2023, where research on the intersectional inequalities affecting LC prevalence, recognition and care was shared and discussed.Methods: Five key themes were drawn up from presentations, discussions and reflections during the workshop, which are presented in this study.Results: The following five themes are discussed: the unfairness of LC, difficulties in accessing care, mistrust of the healthcare system, a lack of understanding of LC and experiences of stigma and discrimination. Factors that widen or narrow inequalities related to LC were identified.Conclusion: A call to action is proposed to investigate and address inequalities through a robust LC research agenda that speaks with conviction to policy and decision‐makers. We argue that there needs to be a strong investment in research and evidence‐based policy and practice to mitigate the worst effects of the condition and address the inequalities in experience, treatment and support, which are experienced more often and more acutely by some of society's most vulnerable and disadvantaged individuals.Patient and Public (PPI) Contribution: Projects included in this article had PPI ongoing activity to inform their research. A member of the CONVALESCENCE PPI group presented at the QLC Network ‘Long Covid and Health Inequalities’ workshop, as did members of Long COVID Kids, Long COVID Support and Long COVID SOS charities. They were all invited to be co‐authors of this article.

22 March 2022 in Prosthetics and Orthotics International
Verified
Journal Article
Closed access
AFAlice Faux-Nightingale
Alice Faux-Nightingale
MKMihaela Kelemen
Mihaela Kelemen
CSCaroline Stewart
Caroline Stewart
Background: Ankle-foot orthoses (AFOs) are commonly supplied to children with cerebral palsy (CP) to support their gait. However, usage is reported to decrease through adolescence. Because AFOs can allow users to engage in daily activities and develop their independence, a wider understanding of nonadherence is essential to determining the most appropriate ways to support orthotic prescription for children with CP in the future. This scoping review will present the literature that investigates AFO adherence of children or adolescents with CP and identify potential avenues for future research and practice. A literature search was carried out using the EBSCO and Web of Science databases to identify literature that investigates AFO adherence by children with CP through measurement of AFO usage and exploration of factors that may influence that usage. Papers that investigated AFO adherence in children/adolescents with CP, either through usage or factors that could affect usage, were included in this review. Data were synthesized using a charting form developed for this review. In total, three papers were included in this review. Two included assessments of AFO usage and all three included at least anecdotal references to factors that could influence that usage. Variation in usage time was seen across participants in all studies, although the method used to record usage may influence reported usage values. Key factors that could affect usage were observed in four key categories: physical/AFO-related factors, personal factors, social factors, and situational appropriateness. Adherence is a complex subject, and both measurement of usage and factors that influence usage are key components needed to understand how children engage with their AFO. By better understanding the motivators and barriers to adherence, it is possible to better support the provision of AFOs in the future.

26 October 2022 in BMJ Open
Verified
Journal Article
Open access
PDF file
FPFraser Philp
Fraser Philp
AFAlice Faux-Nightingale
Alice Faux-Nightingale
JBJames Bateman
James Bateman
HCHeather Clark
Heather Clark
OJOliver Johnson
Oliver Johnson
BSBaldev Malkit Singh
Baldev Malkit Singh
Objectives The association between impaired digital provision, access and health outcomes has not been systematically studied. The Wolverhampton Digital ENablement programme (WODEN) is a multiagency collaborative approach to determine and address digital factors that may impact on health and social care in a single deprived multiethnic health economy. The objective of this study is to determine the association between measurable broadband provision and demographic and health outcomes in a defined population. Design An observational cross-sectional whole local population-level study with cohorts defined according to broadband provision. Setting/participants Data for all residents of the City of Wolverhampton, totalling 269 785 residents. Primary outcomes Poor broadband provision is associated with variation in demographics and with increased comorbidity and urgent care needs. Results Broadband provision was measured using the Broadband Infrastructure Index (BII) in 158 City localities housing a total of 269 785 residents. Lower broadband provision as determined by BII was associated with younger age (p<0.001), white ethnic status (p<0.001), lesser deprivation as measured by Index of Multiple Deprivation (p<0.001), a higher number of health comorbidities (p<0.001) and more non-elective urgent events over 12 months (p<0.001). Conclusion Local municipal and health authorities are advised to consider the variations in broadband provision within their locality and determine equal distribution both on a geographical basis but also against demographic, health and social data to determine equitable distribution as a platform for equitable access to digital resources for their residents.