Objectives To explore factors perceived as positive or negative among young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in relation to school and everyday life. Design A qualitative study with semistructured individual interviews performed at the local hospital or at the informants’ homes between September 2017 and January 2018, with an additional telephone interview to collect data on experiences from the COVID-19 pandemic, conducted in September 2020. Data were analysed using a grounded theory approach. Setting The informants were recruited from two university hospitals that offer interdisciplinary assessments of young people with CFS/ME from various parts of Norway. Participants Five males and 13 females aged 13–21 years with CFS/ME diagnosed 3–56 months prior to the interviews participated. Results The informants were concerned about a lack of educational adaptations and missed social life at school. Educational and social adaptations could improve schooling and health among young people with CFS/ME. Negative experiences were related to a lack of knowledge about CFS/ME among school personnel and young people’s difficulties to limit activities. Online teaching as experienced during the COVID-19 pandemic was described as positive both for education and social life. Conclusions Young people with CFS/ME can benefit from better educational adaptations and increased social interaction with peers. From the participants’ view, factors that limit learning and socialisation include a lack of knowledge about CFS/ME among teachers and school personnel, expectations from teachers of doing more than they could manage at school, feeling alone coping with the disease and not recognising their own limitations regarding what they are able to do. Suggested factors perceived to enhance learning and socialisation were a better understanding of the disease among school personnel and peers, suitable educational adaptations and being able to socialise with peers.

Purpose: The primary aim was to measure health related quality of life (HRQoL) in a Norwegian cohort of adolescents with Chronic Fatigue Syndrome (CFS/ME). A secondary aim was to identify factors before diagnosis, at time of diagnosis and after diagnosis that were associated with HRQoL. Methods: In this cross-sectional population-based study, HRQoL was measured by Pediatric Quality of Life Inventory™ Generic Core scale version 4.0 (PedsQL4.0) in 63 adolescents with CFS/ME. In addition, fatigue was measured by PedsQL Multidimensional Fatigue scale (PedsQL-MFS), depressive symptoms were measured by the Short Mood and Feelings Questionnaire (SMFQ), and disruption in school activities was measured by The De Paul Pediatric Health Questionnaire (DPHQ-N). Data were also collected from medical records and patient interviews. Results: Age at diagnosis was 15 (2) years (mean (SD)), and four out of five participants were female. Time from diagnosis to reply was 39 (22) months. Adolescents with CFS/ME reported PedsQL4.0 score 50 (17), and boys reported a better score than girls (64 vs 47, 95% Confidence Interval (CI) for difference (− 27; − 6)). There were positive associations between overall HRQoL and support from a schoolteacher, school attendance or participation in leisure activities. There were negative associations between overall HRQoL and delayed school progression, having been to rehabilitation stay and depressive symptoms. Conclusion: HRQoL in adolescents diagnosed with CFS/ME was low. The associations between reported HRQoL, healthcare previously provided, support from a schoolteacher, school attendance and participation in leisure activity may provide information of value when developing refined strategies for healthcare among adolescents with CFS/ME. Possible causal relationships must however be explored in future studies.

Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from health care providers to make adequate adaptations to education and social life at school for these students.Objectives: To explore teachers, counselors, and school nurses' experiences with adapting education for students with CFS/ME aged 13–19 in secondary and high schools.Design: A qualitative study with focus group interviews and individual interviews performed face-to-face or digitally between November 2020 and March 2021. Data were analyzed using Systematic text condensation.Participants: Six teachers, two counselors, and four school nurses in secondary and high school participated.Results: Adapting education for students with CFS/ME was challenging, especially before the students received a diagnosis. The challenges were related to identifying the students' adaptational needs, maintaining a teacher-student relationship due to school absence, difficulties in maintaining continuity of education, and uncertainty regarding the diagnosis. Successful adaptations were related to quickly reacting to school absence, early referral to educational, psychological services, a close collaboration with the school management, and the development of digital teaching for students with CFS/ME. Interdisciplinary collaboration and a clear, constructive plan with adaptive measures, including maintained teacher-student communication and educational and social adaptations, may be useful in preventing the losses, young people, with CFS/ME experience.Conclusion: Early interdisciplinary collaboration to adapt education and social life at school for students with CFS/ME, may support teachers, counselors, and school nurses in their efforts to adapt education and prevent losses related to academic and social development in students with CFS/ME.

Background: Collaboration between healthcare services is essential for the quality and continuity of care for persons with chronic pain. Collaboration meetings using digital solutions can be useful in overcoming collaboration challenges. However, there is a scarcity of studies on conducting digital collaboration meetings across services, particularly across healthcare levels for patients with chronic pain. Therefore, the aim of the study was to develop recommendations for how to plan and conduct digital collaboration meetings across care levels and services for patients with chronic pain. Methods: A qualitative study collecting data from a development process for digital collaboration meeting recommendations was conducted between October 2022 and June 2023. Data were collected at workshops, discussions in the clinic and research group meetings. The analysis focused on topics that generated the most discussions during the development process. Results: The discussions leading to the recommendations were categorised into three themes: ‘Patient-centeredness in the digital collaboration meeting’, ‘A common action plan’ and ‘Good meeting climate’. The main discussions included what it meant to place the patient at the centre of the activities, whether the patient should be present when professionals discussed the interprofessional assessments, whether clinical notes and suggestions for action should be distributed before the digital collaboration meeting, and how to ensure well-led meetings with clear agendas. Conclusions: A set of recommendations for how to plan and conduct digital collaboration meetings across care levels and services for patients with chronic pain was developed. Due to practical issues and differing opinions, the final recommendations offer flexible approaches to meet different levels of preparedness before the meeting. The recommendations are ready to be further tested as collaboration meetings are implemented more widely.

Purpose The primary aim was to measure health related quality of life (HRQoL) in a Norwegian cohort of adolescents with Chronic Fatigue Syndrome (CFS/ME). A secondary aim was to identify factors initial to diagnosis, at time of diagnosis and at follow-up that were associated with HRQoL. Methods In this cross-sectional population-based study, HRQoL was measured by PedsQL Generic Core scale (PedsQL4.0) in 63 adolescents with CFS/ME. In addition, fatigue was measured by PedsQL Multidimentional Fatigue scale (PedsQL-MFS), depressive symptoms were measured by the Short Mood and Feelings Questionnaire (SMFQ), and disruption in school activities was measured by The De Paul Pediatric Health Questionnaire (DPHQ-N). Data were also collected from patient journals and patient interviews.Results Age at diagnosis was 15 (2) years (mean (SD)), and four out of five participants were female. Time from diagnosis to reply was 39 (22) months. Adolescents with CFS/ME reported PedsQL4.0 score 50 (17), and boys reported a better score than girls (64 vs 47, CI (-27;-6)). There were positive associations between overall HRQoL and follow-up by school teacher, school attendance or participation in leisure activities. There were negative associations between overall HRQoL and delayed school progression, having been to rehabilitation stay and depressive symptoms.Conclusion HRQoL in adolescents diagnosed with CFS/ME was low compared to healthy adolescents. The associations between HRQoL, healthcare provided, teacher follow-up, school attendance and participation in leisure activity may provide information of value when developing refined strategies for follow-up of adolescents with CFS/ME. Possible causal relationships must however be explored in future longitudinal studies.

Background/Objectives: General movement assessment (GMA) is a clinical assessment tool used to predict risk for cerebral palsy (CP) in young infants. Equal access is challenging since GMA-trained personnel is a limited resource. An implementation study aimed to offer all high-risk infants born in the Central Norway Regional Health Authority equal access to GMA as part of the standard follow-up. This study explored the local health care personnel (HCP) experiences with early risk assessment for CP in young infants using remote GMA. Methods: This was a qualitative study with one focus group and four individual interviews. Participants were HCP from the local follow-up clinics who had experience with GMA. Analyses were inspired by Malterud’s systematic text condensation. Results: Attitudes towards GMA were, in general, positive, and GMA was considered an important and gentle examination contributing to earlier initiation of correct follow-up actions and appropriate treatment. The GMA results could improve communication between HCP and parents, and lead to a closer local municipality follow-up if GMA result was abnormal. Parents were given an active role with home video recording, which was considered family empowering. Especially pediatricians wanted more detailed information about the qualities of spontaneous movements to support clinical decision-making. Conclusions: This study indicated that further implementation of the GMA method to assess the risk of CP in high-risk infants could be recommended, and that GMA was a gentle method for the purpose. As suggested by pediatricians in this study, more detailed assessments using the GMA beyond FMs could be further explored as support to clinical decisions. The insight from this study may inform implementation in similar contexts.