O objetivo deste trabalho foi identificar a percepção de usuários de um serviço de saúde sobre direito à informação e integralidade do cuidado. Trata-se de pesquisa qualitativa, exploratória, com orientação analítico-descritiva, cujo eixo teórico foi o direito à saúde relacionado ao acesso a informação e integralidade do cuidado. As seguintes categorias foram construídas: dificuldades para concretização do cuidado humanizado à saúde em uma unidade básica; despersonalização da relação profissional/usuário do serviço; lacunas na infraestrutura física e humana do serviço; e relacionamento interpessoal entre os diferentes atores do processo de cuidar. O acesso à informação se constitui como aspecto central para a promoção do cuidado integral à saúde. Para conseguir proporcioná-lo de forma adequada, torna-se importante sensibilizar a equipe com relação à importância do empoderamento do usuário, para torná-lo protagonista do cuidado e tê-lo como um aliado no processo do cuidar
1 May 2019 in International Journal of Law and Psychiatry
Background: Health advocacy is crucial for both patients and healthcare professionals. However, nurses who recognize the importance of health advocacy may experience heightened moral distress, particularly in complex donation and transplantation cases where patient autonomy, respect, and advocacy are paramount. Aim: To identify the factors contributing to moral distress among nurses working in solid organ transplant units at a university hospital in São Paulo, with a focus on health advocacy. Research Design: This descriptive, cross-sectional study employs both quantitative and qualitative methods. For this, the quantitative phase of the study was conducted utilizing the Moral Distress Scale, while the qualitative phase was executed through focus group discussions. Participants and Research Context: The quantitative phase involved 15 nurses using the Moral Distress Scale. The qualitative phase consisted of a focus group with 5 nurse managers/coordinators from the transplant units. Quantitative data were analyzed using R® software, while qualitative data were analyzed using Bardin’s Content Analysis. Ethical Considerations: The study was approved by the Research Ethics Committee of the Ribeirão Preto College of Nursing, University of São Paulo. Participation was voluntary and confidentiality was ensured. Results: A significant correlation was found between moral distress and the factors of “disregard for patient autonomy” ( p = .0100) and “therapeutic obstinacy” ( p = .0492). Conclusion: The primary determinants associated with moral distress in the context of health advocacy were identified as “disregard for patient autonomy” and “therapeutic obstinacy.”
The aim of this work is to present the results of research carried out in a city in the interior of São Paulo that sought to understand the health needs of women released from prisons in the region who are cared for at a Center for Attention to Egress and Family (CAEF) as well as the barriers they report in obtaining support, discussing them in light of educational health interventions described in the international literature. This study conducted formative research to identify the themes and issues that should be included in educational material. Data were collected through body-map storytelling and semi-structured interviews with six and twenty women released from prison, respectively, and nine interviews with professionals from the CAEF and the health sector of a women’s penitentiary in the study location. The main health demands of the women identified in the study were chronic diseases, mental health, gynecological problems, and sexually transmitted diseases, which constitute individual barriers and are aggravated by others of a relational, institutional, and political-systemic nature. It is hoped that the present study will inspire new interventions to be considered in the Brazilian context based on these results.
19 December 2018 in Revista Latinoamericana de Bioética
El trasplante de órganos representa uno de los capítulos más exitosos en la historia de la salud mundial. Esta práctica terapéutica ya no es asociada, como otrora, al riesgo del procedimiento, sino a la oportunidad de ofrecer una nueva vida al receptor. El trasplante depende de la aceptación de la donación de órganos que, por involucrar aspectos relacionados con la vida y la muerte, implica dilemas éticos que estimulan la formulación de normas a su respecto. Este estudio tuvo comoobjetivo reflexionar sobre la evolución de la legislación brasileña que regula el Sistema Nacional de Trasplantes en lo que se refiere al proceso donación-trasplante, teniendo como foco los aspectos bioéticos asociados a la temática. Se identificó que la comprensión de la legislación en materia de salud propicia una actuación basada en los derechos fundamentales y la dignidad humana por parte del profesional de la salud. Desde esta perspectiva, es esencial que los profesionales de la salud posean, además de conocimientos técnicos, conocimientos jurídicos y comprensión de las normas existentes y su evolución, con el fin de garantizar los derechos fundamentales de las personas.